Health Services Research Group, IMIM-Hospital del Mar Medical Research Institute, Barcelona, Spain.
Department of Paediatrics, Obstetrics and Gynaecology and Preventive Medicine, Universitat Autònoma de Barcelona, Barcelona, Spain.
Qual Life Res. 2021 Nov;30(11):3127-3144. doi: 10.1007/s11136-020-02706-z. Epub 2021 Jan 2.
The asthma stepwise treatment approach recommended is based on monitoring patients' symptoms. The Asthma Research in Children and Adolescents (ARCA) cohort was created to provide evidence about the evolution of persistent asthma. This manuscript describes the development of an electronic health tool, comprising a mobile health application for patients with asthma and its associated online platform for pediatricians to monitor them.
The development process followed 7 phases: the first 5 (Conceptualization, Preparation, Assessment scheduling, Image and user interface, and Technical development) defined and designed the tool, followed by a testing phase (functionality assessment and pilot test with ARCA patients), and a last phase which evaluated usability. Since the target population was aged 6-16 years, three versions were designed within the same smartphone application: parents/proxy, children, and adolescents. The online platform for pediatricians provides real-time information from the application: patients' responses over time with color-coded charts (red/amber/green, as in traffic lights).
The pilot test through semi-structured phone interviews of the first 50 participants included in the ARCA study (n = 53) detected their misunderstandings. Pediatricians were trained to emphasize that the application is free of charge and requires monthly answers. Median of the System Usability Scale scores (n = 85), ranging 0 (negative)-100 (positive), was > 93 in the three age versions of the application.
Technology has the capability of transforming the use of patient-reported outcomes. Describing all the development phases of a mobile health application for monitoring children and adolescents with asthma may increase the knowledge on how to design applications for young patients.
推荐的哮喘分步治疗方法基于监测患者的症状。哮喘儿童和青少年研究(ARCA)队列的创建旨在提供有关持续性哮喘演变的证据。本文描述了一种电子健康工具的开发,该工具包括用于哮喘患者的移动健康应用程序及其用于监测他们的在线平台。
该开发过程经历了 7 个阶段:前 5 个阶段(概念化、准备、评估安排、图像和用户界面以及技术开发)定义和设计了该工具,然后是测试阶段(功能评估和与 ARCA 患者的试点测试),最后一个阶段评估了可用性。由于目标人群年龄在 6-16 岁之间,因此在同一个智能手机应用程序中设计了三个版本:父母/代理人、儿童和青少年。儿科医生的在线平台提供应用程序中的实时信息:患者随时间的反应,带有彩色图表(红绿灯中的红色/琥珀色/绿色)。
通过对 ARCA 研究中纳入的前 50 名参与者(n = 53)进行半结构化电话访谈的试点测试,发现了他们的误解。培训了儿科医生强调应用程序是免费的,并且需要每月回答。应用程序三个年龄版本的系统可用性量表得分中位数(n = 85)范围为 0(负)-100(正),均>93。
技术有能力改变患者报告结果的使用。描述用于监测儿童和青少年哮喘的移动健康应用程序的所有开发阶段可能会增加有关如何为年轻患者设计应用程序的知识。