Department of Hematology, Aalborg University Hospital, Aalborg, Denmark.
Department of Clinical Medicine, Aalborg University, Aalborg, Denmark.
J Cancer Surviv. 2021 Aug;15(4):620-629. doi: 10.1007/s11764-020-00955-y. Epub 2021 Jan 6.
The aim of the present study was to explore hematological cancer survivors' experiences of participating in a shared care follow-up based on alternating routine physician visits and nurse-led telephone consultations at the Department of Hematology, Aalborg University Hospital, Denmark.
The design was an exploratory qualitative interview study based on a semi-structured interview guide.
Twelve patients who had participated in the shared care follow-up were interviewed. The interviews were recorded and transcribed. Data were analyzed using thematic analysis.
Our findings suggest that hematological patients found the nurse-led telephone consultations convenient and helped alleviate anxiety. Despite fewer visits to the hospital and less physical examinations, the patients' sense of security was maintained. Furthermore, completing questionnaires and the emotional and psychosocial focus in nurse consultations were considered beneficial. Finally, using the telephone was considered to be personal and an acceptable way of talking about topics of a sensitive nature.
Our findings suggest that hematological cancer survivors value alternating routine visits and nurse-led telephone consultations as part of cancer survivorship care as well as the emotional and psychological focus of the shared care follow-up. It seems that their sense of security was maintained due to retention of physical examinations.
The findings from this study underline the importance of the flexibility and adaptability of cancer follow-up in order to meet patients' needs and preferences. Furthermore, this study underlines the importance of cancer survivorship care that goes beyond disease-related support.
本研究旨在探讨丹麦奥尔堡大学医院血液科基于交替常规医生就诊和护士主导的电话咨询的共同护理随访中，血液癌幸存者的体验。
本设计是一项基于半结构化访谈指南的探索性定性访谈研究。
对 12 名参加共同护理随访的患者进行了访谈。访谈进行了录音并进行了转录。使用主题分析对数据进行了分析。
我们的研究结果表明，血液癌患者发现护士主导的电话咨询很方便，可以缓解焦虑。尽管去医院就诊和体检次数减少，但患者的安全感得以维持。此外，填写问卷和护士咨询中的情感和心理焦点被认为是有益的。最后，使用电话被认为是一种个人化的、可以接受的方式来谈论敏感话题。
我们的研究结果表明，血液癌幸存者重视常规就诊和护士主导的电话咨询作为癌症生存护理的一部分，以及共同护理随访中的情感和心理焦点。由于保留了体检，患者的安全感似乎得以维持。
本研究的结果强调了癌症随访的灵活性和适应性的重要性，以满足患者的需求和偏好。此外，本研究强调了超越疾病相关支持的癌症生存护理的重要性。
