Hematology and Oncology Research Center, Tabriz University of Medical Sciences, Tabriz, Iran.
Department of Medical-Surgical Nursing, Nursing and Midwifery Faculty, Sina Educational, Research and Treatment Center, Tabriz University of Medical Sciences, Tabriz, Iran.
Nurs Open. 2021 May;8(3):1444-1451. doi: 10.1002/nop2.761. Epub 2021 Jan 6.
Inherited bleeding diseases greatly affect education, working, job, social activities and quality of life. We aimed to discover the sources of identity challenges among patients with Haemophilia.
The present study has been designed and performed as a qualitative content analysis research.
Participants were purposively selected from haemophilia patients referred to our clinic during one year, from March 2018 to April 2019. Data collection was done through semi-structured, in-depth interviews using purposeful sampling. Data were analysed based on Granheme and Landman method. The main categories were fear of rejection, losing social roles, discrimination and stigma and marriage breakdown.
Patients with haemophilia encounter several challenges due to physical and social constraints caused by the disease. Such challenges result in disturbances in the self-identity of the patients.
According to the results of this study, the nurses should plan to have attention to the patients with haemophilia, based on more protection and better supports.
遗传性出血性疾病极大地影响了患者的受教育程度、工作、职业、社会活动和生活质量。本研究旨在探讨血友病患者身份认同挑战的来源。
本研究是一项定性内容分析研究。
2018 年 3 月至 2019 年 4 月期间，我们从就诊于我们诊所的血友病患者中，通过目的性抽样，选择了符合条件的参与者。通过半结构式深入访谈收集数据。数据基于 Granheme 和 Landman 方法进行分析。主要类别包括害怕被拒绝、失去社会角色、歧视和污名化以及婚姻破裂。
由于疾病引起的身体和社会限制，血友病患者会遇到一些挑战。这些挑战导致患者的自我认同出现紊乱。
根据本研究结果，护士应计划根据更多的保护和更好的支持，关注血友病患者。
