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“我至少应该见过她一面”:阿富汗喀布尔省的父母和医疗保健提供者在死胎后的护理经历和做法。

'I should have seen her face at least once': parent's and healthcare providers' experiences and practices of care after stillbirth in Kabul province, Afghanistan.

机构信息

Sydney School of Public Health, Faculty of Medicine and Health, The University of Sydney, Sydney, NSW, Australia.

Afghanistan National Public Health Institute, Ministry of Public Health, Kabul, Afghanistan.

出版信息

J Perinatol. 2021 Sep;41(9):2182-2195. doi: 10.1038/s41372-020-00907-5. Epub 2021 Jan 6.

DOI:10.1038/s41372-020-00907-5
PMID:33408332
Abstract

OBJECTIVE

This study aimed to explore bereaved parents' and healthcare providers experiences of care after stillbirth.

STUDY DESIGN

Qualitative in-depth interviews with 55 women, men, female elders, healthcare providers and key informants in Kabul province, Afghanistan between October and November 2017.

RESULTS

Inadequate and insensitive communication and practices by healthcare providers, including avoiding or delaying disclosing the stillbirth were recurring concerns. There was a disconnect between parents' desires and healthcare provider's perceptions. The absence of shared decision-making on seeing and holding the baby and memory-making, manifested as profound regret. Health providers' reported hospitals were not equipped to separate women who had a stillbirth and acknowledged that psychological support would be beneficial. However, the absence of trained personnel and resource constraints prevented provision of such support.

CONCLUSION

Findings can inform future provision of perinatal bereavement care. Given resource constraints, communication training can be considered with longer term goals to develop context-appropriate bereavement care guidelines.

摘要

目的

本研究旨在探讨失独父母和医疗保健提供者在胎儿死亡后的护理经验。

研究设计

2017 年 10 月至 11 月,在阿富汗喀布尔省对 55 名妇女、男性、老年妇女、医疗保健提供者和主要信息提供者进行了定性深入访谈。

结果

医疗保健提供者沟通和实践不足且不够敏感,包括回避或延迟披露胎儿死亡,这是反复出现的问题。父母的愿望与医疗保健提供者的看法之间存在脱节。在是否允许父母见到和抱一抱婴儿以及是否制作纪念物方面,未能共同做出决定,这表现为深深的遗憾。卫生提供者报告说,医院没有为死产的妇女提供单独的空间,并承认心理支持将是有益的。然而,由于缺乏训练有素的人员和资源限制,无法提供这种支持。

结论

调查结果可以为围产期丧亲护理的未来提供信息。鉴于资源限制,可以考虑进行沟通培训,以实现制定适合国情的丧亲护理指南的长期目标。

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本文引用的文献

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Communication skills in Obstetrics: what can we learn from bereaved parents?产科中的沟通技巧:我们能从失去亲人的父母身上学到什么?
Ir Med J. 2017 Feb 10;110(2):512.
产后期丧失后医疗保健机构使用的丧亲护理指南:范围综述。
JBI Evid Synth. 2024 Oct 1;22(10):2003-2089. doi: 10.11124/JBIES-23-00149.
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Nursing care for parents who have experienced fetal demise: integrative review.经历胎儿死亡的父母的护理:综合评价。
Rev Bras Enferm. 2024 Mar 15;77(1):e20220811. doi: 10.1590/0034-7167-2022-0811. eCollection 2024.