Perspect Biol Med. 2020;63(3):544-548. doi: 10.1353/pbm.2020.0045.
Pope Francis's Address to the participants of the conference "Yes to Life! Taking Care of the Precious Gift of Life in Its Frailty" powerfully touches on multiple important aspects of the care of children experiencing "extreme frailty." It is a deeply moral account of the challenges that health-care providers, families, and patients confront in the technologically sophisticated and confusing world of modern medicine. This commentary draws upon a clinical case to contextualize the Pope's words in the hope of achieving a nuanced understanding of what pediatric palliative care offers to children experiencing extreme frailty. In his Address, the Pope asks health-care providers to consider an approach to frailty and suffering that allows for the opportunity to experience transcendent meaning and transpersonal value, and recognizes that it would be difficult to achieve these goals without the comprehensive and capable care offered by pediatric palliative care specialists.
教宗方济各在“是的,生命!关爱生命的脆弱礼物”会议上的讲话有力地触及了照顾处于“极度脆弱”状态的儿童的多个重要方面。这是对医疗保健提供者、家庭和患者在现代医学技术复杂和令人困惑的世界中所面临的挑战的深刻道德阐述。本评论引用了一个临床案例,以使教宗的言论在背景中得到体现,希望对儿科姑息治疗为处于极度脆弱状态的儿童提供的服务有一个细致入微的理解。在讲话中,教宗要求医疗保健提供者考虑一种对待脆弱和痛苦的方法,这种方法允许有机会体验超凡的意义和超个人的价值,并认识到如果没有儿科姑息治疗专家提供的全面和有能力的护理,这些目标很难实现。