Peeters Niels, Løyning Inger Grethe, Ferdinand Sofie, Kos Daphne
Int J MS Care. 2020 Nov-Dec;22(6):256-262. doi: 10.7224/1537-2073.2019-094. Epub 2020 Oct 16.
The purpose of this narrative review is to define the theoretical constructs of engagement, participation, and balance. The implementation of these constructs in multiple sclerosis (MS) rehabilitation are described because MS symptoms such as fatigue and cognitive decline may affect engagement in daily life. The constructs of engagement and participation can be considered to be different when they are studied. The constructs related to balance are of interest when targeting engagement. Multidisciplinary rehabilitation programs may have beneficial effects in optimizing engagement. Therefore, the measurement of these constructs is primordial because they give us a deeper understanding of the meaning of activity performance that reflects engagement in daily life. Future research may focus on describing engagement in both men and women at all stages of MS and may explore variables that influence engagement in daily life to integrate engagement optimization in MS rehabilitation. Engagement may have beneficial effects as part of multidisciplinary rehabilitation in MS.
本叙述性综述的目的是界定参与、融入和平衡的理论概念。文中描述了这些概念在多发性硬化症(MS)康复中的应用,因为诸如疲劳和认知衰退等MS症状可能会影响日常生活中的参与度。在研究时,参与和融入的概念可能被认为有所不同。在以参与为目标时,与平衡相关的概念很重要。多学科康复计划可能在优化参与方面具有有益效果。因此,对这些概念的测量至关重要,因为它们能让我们更深入地理解反映日常生活参与度的活动表现的意义。未来的研究可能聚焦于描述MS各个阶段男性和女性的参与情况,并可能探索影响日常生活参与度的变量,以便将参与优化纳入MS康复中。作为MS多学科康复的一部分,参与可能具有有益效果。