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2
Activity limitations and participation restrictions in people with multiple sclerosis: a detailed 10-year perspective.多发性硬化症患者的活动受限和参与受限:详细的 10 年观察。
Disabil Rehabil. 2021 Feb;43(3):406-413. doi: 10.1080/09638288.2019.1626919. Epub 2019 Jun 13.
3
Occupational Therapy in Fatigue Management in Multiple Sclerosis: An Umbrella Review.多发性硬化症疲劳管理中的职业疗法:一项综合综述。
Mult Scler Int. 2019 Mar 21;2019:2027947. doi: 10.1155/2019/2027947. eCollection 2019.
4
Psychometric properties of the Flemish version of the life balance inventory: a patient-reported outcome measure in the chronic stage after stroke.生活平衡量表弗拉芒语版的心理测量特性:中风后慢性期的患者报告结局测量指标。
Disabil Rehabil. 2020 Oct;42(20):2951-2958. doi: 10.1080/09638288.2019.1575921. Epub 2019 Mar 4.
5
The relation between goal adjustment, goal disturbance, and mental well-being among persons with multiple sclerosis.多发性硬化症患者的目标调整、目标干扰与心理健康之间的关系。
Psychol Health. 2019 Jun;34(6):645-660. doi: 10.1080/08870446.2018.1556272. Epub 2019 Jan 26.
6
Rehabilitation for people with multiple sclerosis: an overview of Cochrane Reviews.多发性硬化症患者的康复治疗:Cochrane系统评价综述
Cochrane Database Syst Rev. 2019 Jan 14;1(1):CD012732. doi: 10.1002/14651858.CD012732.pub2.
7
A systematic review of the effectiveness of self-management interventions in people with multiple sclerosis at improving depression, anxiety and quality of life.一项关于自我管理干预措施对多发性硬化症患者改善抑郁、焦虑及生活质量有效性的系统评价。
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Arch Phys Med Rehabil. 2017 Feb;98(2):353-367. doi: 10.1016/j.apmr.2016.04.016. Epub 2016 May 20.
9
[Translation and validation of the Life Balance Inventory: An occupational therapy questionnaire].《生活平衡量表的翻译与验证:一份职业治疗问卷》
Can J Occup Ther. 2016 Apr;83(2):103-14. doi: 10.1177/0008417416632260.
10
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康复在促进多发性硬化症患者日常生活参与度中的作用:应对21世纪的挑战

Role of Rehabilitation in Promoting Engagement in Daily Life in Multiple Sclerosis: Facing the Challenges of the 21st Century.

作者信息

Peeters Niels, Løyning Inger Grethe, Ferdinand Sofie, Kos Daphne

出版信息

Int J MS Care. 2020 Nov-Dec;22(6):256-262. doi: 10.7224/1537-2073.2019-094. Epub 2020 Oct 16.

DOI:10.7224/1537-2073.2019-094
PMID:33424480
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7780697/
Abstract

The purpose of this narrative review is to define the theoretical constructs of engagement, participation, and balance. The implementation of these constructs in multiple sclerosis (MS) rehabilitation are described because MS symptoms such as fatigue and cognitive decline may affect engagement in daily life. The constructs of engagement and participation can be considered to be different when they are studied. The constructs related to balance are of interest when targeting engagement. Multidisciplinary rehabilitation programs may have beneficial effects in optimizing engagement. Therefore, the measurement of these constructs is primordial because they give us a deeper understanding of the meaning of activity performance that reflects engagement in daily life. Future research may focus on describing engagement in both men and women at all stages of MS and may explore variables that influence engagement in daily life to integrate engagement optimization in MS rehabilitation. Engagement may have beneficial effects as part of multidisciplinary rehabilitation in MS.

摘要

本叙述性综述的目的是界定参与、融入和平衡的理论概念。文中描述了这些概念在多发性硬化症(MS)康复中的应用,因为诸如疲劳和认知衰退等MS症状可能会影响日常生活中的参与度。在研究时,参与和融入的概念可能被认为有所不同。在以参与为目标时,与平衡相关的概念很重要。多学科康复计划可能在优化参与方面具有有益效果。因此,对这些概念的测量至关重要,因为它们能让我们更深入地理解反映日常生活参与度的活动表现的意义。未来的研究可能聚焦于描述MS各个阶段男性和女性的参与情况,并可能探索影响日常生活参与度的变量,以便将参与优化纳入MS康复中。作为MS多学科康复的一部分,参与可能具有有益效果。