Jellema Sandra, Bakker Kim, Nijhuis-van der Sanden Maria W G, van der Sande Rob, Steultjens Esther Mj
IQ Healthcare, Radboud university medical center, Nijmegen, The Netherlands.
School of Allied Health, HAN University of Applied Sciences, Nijmegen, The Netherlands.
Top Stroke Rehabil. 2022 Jan;29(1):30-39. doi: 10.1080/10749357.2020.1871285. Epub 2021 Jan 11.
After discharge, stroke survivors and their informal caregivers need support from their social networks to resume their most valued activities. Rehabilitation professionals could help them establish a strong support system.
Explore how older stroke survivors and their primary informal caregivers expect to resume their valued activities after discharge, and discover their ideas about involving, informing and educating their family members, friends and important others during inpatient rehabilitation so that, once home, they will have adequate support.
We conducted semi-structured interviews with stroke survivors from three geriatric rehabilitation centres and their primary informal caregivers, used the pictures of daily activities to elicit their perspectives, and applied a descriptive and interpretive design to data analysis.
Many participants had no concrete idea about how to resume their activities after discharge but nevertheless were optimistic they would. They expected help to be available and saw no need for professionals to involve their network during inpatient rehabilitation. However, once they had insight into the challenges to expect after discharge, they often appreciated the idea of professionals contacting their network. To better understand the challenges after discharge, it was helpful if professionals provided concrete, honest information about the stroke's consequences for daily life. Actually doing daily activities also helped gain better insights.
To enhance insight in the need of social support after discharge, we suggest that rehabilitation professionals are honest about what to expect and let stroke survivors explore their valued activities in a realistic context more often.
出院后，中风幸存者及其非正式照护者需要社会网络的支持来恢复他们最重视的活动。康复专业人员可以帮助他们建立一个强大的支持系统。
探讨老年中风幸存者及其主要非正式照护者出院后如何期望恢复他们重视的活动，并了解他们对于在住院康复期间让家庭成员、朋友和其他重要他人参与进来、了解情况并接受教育的想法，以便回家后能获得足够的支持。
我们对来自三个老年康复中心的中风幸存者及其主要非正式照护者进行了半结构化访谈，利用日常活动图片引出他们的观点，并对数据分析采用描述性和解释性设计。
许多参与者对于出院后如何恢复活动没有具体想法，但仍对能够恢复持乐观态度。他们期望能得到帮助，并且认为专业人员在住院康复期间无需让他们的社交网络参与进来。然而，一旦他们洞察到出院后可能面临的挑战，往往就会赞赏专业人员联系他们社交网络的想法。为了更好地理解出院后的挑战，如果专业人员能提供关于中风对日常生活影响的具体、真实信息会很有帮助。实际进行日常活动也有助于获得更好的认识。
为了增强对出院后社会支持需求的认识，我们建议康复专业人员诚实地告知预期情况，并让中风幸存者更频繁地在现实背景下探索他们重视的活动。
