Clinic for Internal Medicine C - Haematology, Oncology, Stem Cell transplantation and Palliative Care, Greifswald, Germany.
Institute of Medical Psychology, 60634University-Medicine Greifswald, Greifswald, Germany.
Am J Hosp Palliat Care. 2021 Oct;38(10):1212-1217. doi: 10.1177/1049909120986963. Epub 2021 Jan 12.
Allogeneic stem cell transplantation (alloSCT) is a curative therapy for otherwise fatal diseases, however it is associated with a considerable morbidity and mortality. In consequence, it can be assumed that a considerable percentage of patients would benefit from high-quality palliative care (PC) during their course of disease. To assess the standard of PC in German transplant centers, a questionnaire was sent out to all German centers recognized from the EBMT membership list and the annually ZKRD report (n = 52). The response rate was not as high as expected with n = 27 (51,9%), even after reminding by phone calls or by e-mails. In brief, palliative care after allogeneic stem cell transplantation shows a wide variation in Germany. This is true for structures, processes and measures. A national standard for SCT-patients has not been established so far and there are no pre-conditions concerning palliative care after alloSCT for a certification by the EBMT according the JACIE standards. There is a considerable need for a crosslinking of alloSCT with PC. Clear standards should be established by the scientific societies concerning personnel, structure and processes.
异基因干细胞移植(alloSCT)是一种可治愈某些致命疾病的疗法,但它也与相当高的发病率和死亡率相关。因此,可以假设在疾病过程中,相当一部分患者将受益于高质量的姑息治疗(PC)。为了评估德国移植中心的 PC 标准,向 EBMT 会员名单和每年的 ZKRD 报告中列出的所有德国中心发送了一份问卷(n = 52)。尽管通过电话或电子邮件提醒,但响应率并不如预期的高,n = 27(51.9%)。简而言之,德国的异基因干细胞移植后的姑息治疗存在很大差异。这适用于结构、流程和措施。迄今为止,还没有为 SCT 患者制定国家标准,也没有根据 JACIE 标准对 alloSCT 后 PC 进行认证的前提条件。需要将 alloSCT 与 PC 进行有效的结合。科学协会应就人员、结构和流程制定明确的标准。