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陪伴自愿停止进食和饮水者的人的观点:一项聚合性混合方法研究。

Perspectives of people accompanying a person during voluntary stopping eating and drinking: a convergent mixed methods study.

作者信息

Stängle Sabrina, Fringer André

机构信息

Department of Nursing Science, Faculty of Health, Witten/Herdecke University, Witten, Germany; Institute of Nursing, School of Health Professions, Zurich University of Applied Sciences, Winterthur, Switzerland.

出版信息

Ann Palliat Med. 2021 Feb;10(2):1994-2007. doi: 10.21037/apm-20-1339. Epub 2021 Jan 11.

DOI:10.21037/apm-20-1339
PMID:33440976
Abstract

BACKGROUND

Voluntary stopping eating and drinking (VSED) is an option for people wishing to bring about premature death. In Switzerland, VSED is considered a controversial action at the end of life in the guidelines for "Management of dying and death," which states that the decision to support or oppose VSED must be made individually by health care professionals; so far there are no instructions for action. The aim of this research was to explore the experiences of people who play an important role in VSED accompaniment, and to explain how the people involved in the process deal with VSED.

METHODS

This convergent mixed methods study included a national survey (n=1,681) and five focus group interviews (n=47). Data integration was conducted using the four-stage pillar integration process.

RESULTS

Given Swiss society interest, VSED has already established itself in the health system without the institutions having addressed the issue, whereupon health professionals make individual decisions when a person willing to die comes to them with a VSED wish. Health professionals are open to VSED, but are also ambivalent and would like to know more about it before being confronted with a VSED case.

CONCLUSIONS

In Switzerland, VSED has become a rare but desired option for ending life prematurely. While health professionals are already being confronted with the phenomenon, there is a lack of discussion at the level of health institutions about how to deal with it.

摘要

背景

自愿停止进食和饮水(VSED)是希望提前结束生命的人的一种选择。在瑞士,VSED在“临终与死亡管理”指南中被视为临终时的一项有争议的行为,该指南指出,支持或反对VSED的决定必须由医疗保健专业人员单独做出;到目前为止,尚无行动指南。本研究的目的是探索在VSED陪伴中发挥重要作用的人们的经历,并解释参与该过程的人们如何应对VSED。

方法

这项 convergent 混合方法研究包括一项全国性调查(n = 1,681)和五次焦点小组访谈(n = 47)。使用四阶段支柱整合过程进行数据整合。

结果

鉴于瑞士社会的关注,VSED已在卫生系统中确立了自身地位,但各机构尚未解决这一问题,因此当有死亡意愿的人带着VSED愿望找到他们时,卫生专业人员会做出个人决定。卫生专业人员对VSED持开放态度,但也存在矛盾心理,并且希望在面对VSED案例之前了解更多相关信息。

结论

在瑞士,VSED已成为提前结束生命的一种罕见但受欢迎的选择。虽然卫生专业人员已经面临这一现象,但卫生机构层面缺乏关于如何应对它的讨论。

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引用本文的文献

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Healthcare (Basel). 2025 May 27;13(11):1264. doi: 10.3390/healthcare13111264.
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Patients Who Seek to Hasten Death by Voluntarily Stopping Eating and Drinking: A Qualitative Study.自愿停止进食和饮水以寻求加速死亡的患者:一项定性研究。
Ann Fam Med. 2023 Nov-Dec;21(6):534-544. doi: 10.1370/afm.3037.
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Caring for patients during voluntarily stopping of eating and drinking (VSED): experiences of a palliative care team in Germany.
在自愿停止进食和饮水期间照顾患者(VSED):德国一个姑息治疗团队的经验。
BMC Palliat Care. 2023 Nov 21;22(1):185. doi: 10.1186/s12904-023-01308-z.
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"Discussion or silent accompaniment: a grounded theory study about voluntary stopping of eating and drinking in Switzerland".“讨论或默默陪伴:关于瑞士自愿停止进食和饮水的扎根理论研究”。
BMC Palliat Care. 2022 May 24;21(1):85. doi: 10.1186/s12904-022-00941-4.