Ferrell Betty, Kravits Kate, Borneman Tami, Pal Sumanta K, Lee Janet
City of Hope National Medical Center, Duarte, California.
Vital Research LLC, Los Angeles, California.
J Adv Pract Oncol. 2019 Jul;10(5):444-455. doi: 10.6004/jadpro.2019.10.5.3. Epub 2019 Jul 1.
Family caregivers are the primary providers of care. Education and support are needed to prepare them for the complex physical, psychological, social, and spiritual effects of cancer. This randomized clinical trial tested a palliative care intervention with 240 family caregivers, focusing on family caregivers who reported financial strain from cancer and treatment. A four-part educational program demonstrated improved outcomes in the intervention group in the measures of objective burden, caregiving preparation, and quality of life. The role of advanced practitioners in providing tailored psychoeducation and support to caregivers is important in order to meet the integral needs of patients with cancer as well as to enhance caregiver self-care.
家庭护理人员是主要的护理提供者。需要对他们进行教育和提供支持,以使他们为癌症带来的复杂身体、心理、社会和精神影响做好准备。这项随机临床试验对240名家庭护理人员进行了姑息治疗干预,重点关注那些报告因癌症和治疗而面临经济压力的家庭护理人员。一个由四部分组成的教育项目在客观负担、护理准备和生活质量等指标上显示干预组有更好的结果。高级从业者在为护理人员提供量身定制的心理教育和支持方面的作用很重要,这既能满足癌症患者的整体需求,也能增强护理人员的自我护理能力。