Department of Psychology, City, University of London, London, UK.
J Eval Clin Pract. 2021 Jun;27(3):562-570. doi: 10.1111/jep.13536. Epub 2021 Jan 21.
RATIONALE, AIMS AND OBJECTIVES: According to an influential taxonomy of varieties of uncertainty in health care, existential uncertainty is a key aspect of uncertainty for patients. Although the term "existential uncertainty" appears across a number of disciplines in the research literature, its use is diffuse and inconsistent. To date there has not been a systematic attempt to define it. The aim of this study is to generate a theoretically-informed conceptualisation of existential uncertainty within the context of an established taxonomy.
Existential uncertainty was subjected to a concept analysis, which drew on existing uses of the term across multiple disciplines as well as insights from uncertainty theory more broadly and from the existential therapy literature to generate a tentative definition of the concept. Antecedents, consequences, and empirical referents of existential uncertainty were also identified. A model case was described as well as a borderline case and a related case in order to illustrate and delineate the concept.
Existential uncertainty is conceptualised as an awareness of the undetermined but finite nature of one's own being-in-the-world, concerned primarily with identity, meaning, and choice. This awareness is fundamental and ineradicable, and manifests at different levels of consciousness.
Humans rely on identity, worldview, and a sense of meaning in life as ways of managing the ineradicable uncertainty of our being-in-the-world, and these can be challenged by a serious diagnosis. It is important that medical professionals acknowledge issues around existential uncertainty as well as issues around scientific uncertainty, and recognise when patients might be struggling with these. Further research is required to identify ways of measuring existential uncertainty and to develop appropriate interventions, but it is hoped that this conceptualisation provides a useful first step towards that goal.
背景、目的和目标:根据医疗保健中不确定性的一种有影响力的分类法,存在性不确定性是患者不确定性的一个关键方面。尽管“存在性不确定性”一词出现在研究文献的多个学科中,但它的使用是分散和不一致的。迄今为止,尚未有人试图对其进行系统定义。本研究的目的是在既定分类法的背景下,对存在性不确定性进行理论启发式的概念化。
对存在性不确定性进行概念分析,该分析借鉴了多个学科中对该术语的现有用法,以及不确定性理论以及存在主义治疗文献中的见解,以对该概念进行初步定义。还确定了存在性不确定性的前提、后果和经验参照。描述了一个典型案例以及一个边界案例和一个相关案例,以说明和划定该概念。
将存在性不确定性概念化为对自身在世界中的不确定但有限的存在的意识,主要关注身份、意义和选择。这种意识是基本的、不可磨灭的,并且在不同的意识水平上表现出来。
人类依赖身份、世界观和生活意义感来应对我们在世界中的存在所带来的不可避免的不确定性,而这些可能会受到严重诊断的挑战。医疗专业人员承认存在性不确定性问题以及科学不确定性问题很重要,并认识到患者何时可能会遇到这些问题。需要进一步研究来确定衡量存在性不确定性的方法并开发适当的干预措施,但希望这一概念化能为实现这一目标提供一个有用的第一步。