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癌症患者经历中的生存不确定性:界定这一概念。

Existential uncertainty in the patient cancer experience: Delimiting the concept.

作者信息

Dwan Conor, Willig Carla

出版信息

Palliat Support Care. 2023 Apr;21(2):247-253. doi: 10.1017/S1478951522000104.

Abstract

OBJECTIVE

To delimit the concept of existential uncertainty in the patient cancer experience from other, related aspects of uncertainty in the context of an existing framework of health-related uncertainty.

METHODS

In-depth interviews were carried out with six people living with cancer and analyzed using theory-driven, concept-focused thematic analysis.

RESULTS

Our analysis suggests that existential uncertainty is concerned with meaning rather than information; with the person rather than the disease; and with the fundamental nature of our human being-in-the-world rather than the more practical aspects of our relationships with others. Patient expressions of existential uncertainty may involve a nonscientific discourse of metaphor, analogy, and imagination.

SIGNIFICANCE OF RESULTS

It is important for professionals working in supportive oncology to have a conceptual understanding of uncertainty in order to choose how best to respond to patients' needs, as different interventions may be more or less appropriate to different aspects of patient uncertainty.

摘要

目的

在现有的健康相关不确定性框架背景下,将患者癌症经历中的生存不确定性概念与其他相关的不确定性方面进行界定。

方法

对六名癌症患者进行了深入访谈,并采用理论驱动、以概念为重点的主题分析方法进行分析。

结果

我们的分析表明,生存不确定性关乎意义而非信息;关乎人而非疾病;关乎我们人类在世界中的基本本质而非我们与他人关系中更实际的方面。患者对生存不确定性的表达可能涉及隐喻、类比和想象的非科学话语。

结果的意义

对于支持性肿瘤学领域的专业人员来说,从概念上理解不确定性很重要,以便选择如何最好地满足患者需求,因为不同的干预措施可能对患者不确定性的不同方面或多或少适用。

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