Zeidan Jinan, Joseph Lawrence, Camden Chantal, Shevell Michael, Oskoui Maryam, Lamotte Patricia, Shikako-Thomas Keiko
Montreal Neurological Institute, McGill University, Montreal, Canada.
Department of Epidemiology and Statistics, McGill University, Montreal, Canada.
Phys Occup Ther Pediatr. 2021;41(4):429-446. doi: 10.1080/01942638.2020.1867693. Epub 2021 Jan 25.
This study aimed at gaining a deeper understanding of the environmental and socio-economic factors affecting participation outcomes in community and leisure activities for children with disabilities, as well as the trajectories of participation for these children to promote their health and guarantee their rights are respected. A participatory action research (PAR) approach and linear regression analysis were employed to identify contextual factors associated with the community participation of children with cerebral palsy (CP) living in Quebec, Canada. Stakeholders engaged through the entire research process supported the development of questionnaires, data collection, analysis and interpretation of results. Neighborhood outings were ranked among the most practiced activities by children with CP. Only in a few cases (9%) did children participate in more than two types of activities outside of school. Factors limiting children's participation were predominantly extrinsic in origin, including financial burden and lack of information about existing opportunities. There is a serious need for communities and local governments to inform parents about available resources, programs and policies that can support their child's participation. Rehabilitation professionals could partner with stakeholders to inform the development of public policies that target the identified barriers and promote children's integration and fulfillment.
本研究旨在更深入地了解影响残疾儿童参与社区和休闲活动成果的环境和社会经济因素,以及这些儿童的参与轨迹,以促进他们的健康并确保他们的权利得到尊重。采用参与式行动研究(PAR)方法和线性回归分析来确定与居住在加拿大魁北克的脑瘫(CP)儿童社区参与相关的背景因素。在整个研究过程中参与的利益相关者支持问卷的编制、数据收集、结果分析和解释。邻里出行被列为CP儿童最常进行的活动之一。只有少数情况(9%)下,儿童参与了两种以上的校外活动。限制儿童参与的因素主要源于外部,包括经济负担和缺乏关于现有机会的信息。社区和地方政府迫切需要告知家长有关可支持其子女参与的可用资源、项目和政策。康复专业人员可以与利益相关者合作,为针对已确定障碍并促进儿童融入和成长的公共政策的制定提供信息。