Shikako-Thomas Keiko, Kolehmainen Niina, Ketelaar Marjolijn, Bult Maureen, Law Mary
CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, Canada
Institute of Health and Society, Newcastle University, The Baddiley-Clark Building, Richardson Road, Newcastle upon Tyne, United Kingdom.
J Child Neurol. 2014 Aug;29(8):1125-33. doi: 10.1177/0883073814533422. Epub 2014 Jun 5.
Participation in leisure is a human right and is central to the health of children and youth. The World Health Organization's International Classification of Functioning, Disability and Health for Children and Youth supported a change in thinking about what outcomes are most relevant in the context of children's health and places participation as one of the constituent elements of health. Participation is also a fundamental rehabilitation and health promotion outcome for children with cerebral palsy as identified by youth, parents, and health professionals. Several studies have identified individual and environmental factors related to participation in leisure; new studies are now determining the best interventions to promote participation. This article summarizes recent findings and proposes important topics for neurologists to consider in exploring leisure pursuits with children with cerebral palsy and their families and in working with rehabilitation professionals to promote engagement in leisure opportunities as part of integrated care.
参与休闲是一项人权,对儿童和青少年的健康至关重要。世界卫生组织的《儿童和青少年功能、残疾与健康国际分类》推动了人们思维方式的转变,即思考在儿童健康背景下哪些结果最为相关,并将参与列为健康的构成要素之一。青年、家长和健康专业人员也认定,参与也是脑瘫儿童康复和健康促进的一项基本成果。多项研究已确定了与参与休闲相关的个人因素和环境因素;目前新的研究正在确定促进参与的最佳干预措施。本文总结了近期研究结果,并提出了一些重要议题,供神经科医生在与脑瘫儿童及其家庭探讨休闲活动,以及与康复专业人员合作以促进他们参与休闲机会作为综合护理一部分时加以考虑。