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“我在这之前已经经历过非常可怕的风暴了……”:美国 COVID-19 大流行早期,照顾血液系统和肿瘤疾病患儿的家长的经历

"I've Weathered Really Horrible Storms Long Before This…": The Experiences of Parents Caring for Children with Hematological and Oncological Conditions during the Early Months of the COVID-19 Pandemic in the U.S.

机构信息

Department of Pediatrics, Division of Hematology, Oncology & Stem Cell Transplantation, Columbia University Irving Medical Center, 161 Fort Washington Avenue-IP 7, New York, NY, 10032, USA.

Department of Psychiatry, Division of Child & Adolescent Psychiatry, Columbia University Irving Medical Center, 161 Fort Washington Avenue-IP 7, New York, NY, 10032, USA.

出版信息

J Clin Psychol Med Settings. 2021 Dec;28(4):720-727. doi: 10.1007/s10880-020-09760-2. Epub 2021 Jan 25.

Abstract

The societal impact of COVID-19 is vast, thus it is imperative to understand how vulnerable groups, such as children with chronic medical conditions are affected. This understanding can prepare psychologists and other healthcare providers to meet their current and future needs. A convenience sample of 11 parents of children with hematological/oncological conditions was recruited. They participated in semi-structured interviews on the effect of the COVID-19 pandemic on their children. Qualitative analysis identified common themes. Parental responses focused on the pandemic's impact on children's general daily life and healthcare. Themes of caution, uncertainty, adaptation, and the role of the healthcare providers and early medical experiences emerged. Concerns about vulnerability, changes in routine, the importance of virtual connections, and the pivotal role of providers have implications for children with and without medical conditions. The adaptation and resilience of the families provide a sense of hope in an uncertain time.

摘要

新冠疫情对社会的影响是巨大的,因此了解弱势群体(如患有慢性疾病的儿童)受到的影响至关重要。这种了解可以使心理学家和其他医疗保健提供者为满足他们当前和未来的需求做好准备。研究人员招募了 11 名患有血液/肿瘤疾病儿童的家长作为便利样本,他们参加了关于新冠疫情对其子女影响的半结构化访谈。定性分析确定了常见主题。家长的反应集中在大流行对儿童日常生活和医疗保健的影响上。出现了谨慎、不确定、适应以及医疗保健提供者和早期医疗经验作用的主题。对脆弱性、常规变化、虚拟联系的重要性以及提供者关键作用的关注对有和没有医疗条件的儿童都有影响。在不确定的时期,家庭的适应和恢复能力带来了希望。

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