Department of Neonatology, Leiden University Medical Center, Leiden, The Netherlands
Department of Medical Ethics and Health Law, Leiden University Medical Center, Leiden, The Netherlands.
Arch Dis Child Fetal Neonatal Ed. 2021 Jul;106(4):346-351. doi: 10.1136/archdischild-2020-320059. Epub 2021 Jan 29.
Recording of neonatal resuscitation, including video and respiratory parameters, was implemented for research and quality purposes at the neonatal intensive care unit (NICU) of the Leiden University Medical Center, and parents were offered to review the recording of their infant together with a neonatal care provider. We aimed to provide insight in parental experiences with reviewing the recording of the neonatal resuscitation of their premature infant.
This study combined participant observations during parental review of recordings with retrospective qualitative interviews with parents.
Parental review of recordings of neonatal resuscitation was observed on 20 occasions, reviewing recordings of 31 children (12 singletons, 8 twins and 1 triplet), of whom 4 died during admission. Median (range) gestational age at birth was 27+5 (24+5-30+3) weeks. Subsequently, 25 parents (13 mothers and 12 fathers) were interviewed.Parents reported many positive experiences, with special emphasis on the value for getting hold of the start of their infant's life and coping with the trauma of neonatal resuscitation. Reviewing recordings of neonatal resuscitation frequently resulted in appreciation for the child, the father and the medical team. Timing and set-up of the review contributed to positive experiences. Parents considered screenshots/copies of the recording of the resuscitation of their infant as valuable keepsakes of their NICU story and reported that having the screenshots/video comforted them, especially when their child died during admission.
Parents consider reviewing recordings of neonatal resuscitation as valuable. These positive parental experiences could allay concerns about sharing recordings of neonatal resuscitation with parents.
为了研究和质量目的，莱顿大学医学中心的新生儿重症监护病房（NICU）记录新生儿复苏，包括视频和呼吸参数，并为父母提供与新生儿护理提供者一起查看其婴儿记录的机会。我们旨在深入了解父母对查看其早产儿新生儿复苏记录的体验。
这项研究将参与者在父母查看记录时的观察与对父母的回顾性定性访谈相结合。
在 20 次情况下观察了新生儿复苏记录的父母审查，审查了 31 名儿童（12 名单胎，8 名双胞胎和 1 名三胞胎）的记录，其中 4 名在住院期间死亡。出生时的中位（范围）胎龄为 27+5（24+5-30+3）周。随后，对 25 名父母（13 名母亲和 12 名父亲）进行了访谈。父母报告了许多积极的体验，特别强调了获得婴儿生命开始和应对新生儿复苏创伤的价值。查看新生儿复苏记录经常会对孩子、父亲和医疗团队表示赞赏。审查的时间安排和设置促成了积极的体验。父母认为他们婴儿复苏记录的截图/副本是他们新生儿重症监护室故事的宝贵纪念品，并报告说这些截图/视频使他们感到安慰，尤其是当他们的孩子在住院期间死亡时。
父母认为查看新生儿复苏记录很有价值。这些积极的父母体验可以消除与父母分享新生儿复苏记录的担忧。
