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美国国立卫生研究院新冠病毒神经数据库和神经生物样本库:一个用于学习、发现和进步的国家资源。

The National Institutes of Health COVID-19 NeuroDatabank and NeuroBiobank: A National Resource for Learning, Discovery, and Progress.

作者信息

Troxel Andrea B, Frontera Jennifer A, Mendoza-Puccini Carolina

机构信息

Department of Population Health, New York University Grossman School of Medicine, New York, NY, United States.

Department of Neurology, New York University Grossman School of Medicine, New York, NY, United States.

出版信息

Front Neurol. 2021 Jan 15;11:615061. doi: 10.3389/fneur.2020.615061. eCollection 2020.

Abstract

Patients suffering from COVID-19 experience a wide range of symptoms and sequelae, including increasingly recognized neurological problems. A concerted effort is necessary to identify and characterize these issues, whether newly appearing as a result of COVID-19 disease or exacerbations of underlying conditions. A national resource to collect information and/or biospecimens regarding neurological complications of COVID-19 offers an opportunity for broad representation, harmonization, and rapid learning, all while ensuring robust protection of confidential information through the use of global unique identifiers to protect patient privacy.

摘要

新冠肺炎患者会出现各种各样的症状和后遗症,包括越来越多被认识到的神经问题。无论是作为新冠肺炎疾病新出现的问题,还是潜在疾病的加重,都需要共同努力来识别和描述这些问题。一个收集有关新冠肺炎神经并发症信息和/或生物样本的国家资源,提供了广泛代表性、协调和快速学习的机会,同时通过使用全球唯一标识符来保护患者隐私,确保对机密信息的有力保护。

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