School of Nursing, Philadelphia University, Jordan.
Prince Muna College of Nursing, Jordan.
J Pediatr Nurs. 2021 May-Jun;58:e74-e80. doi: 10.1016/j.pedn.2021.01.009. Epub 2021 Jan 19.
This study aimed to investigate the experiences of parents who care for children diagnosed with leukaemia. This paper is focused solely on reporting the interview findings from participating mothers regarding the challenges of caring for children with leukaemia in the context of the COVID-19.
The study took place in a Jordanian hospital where a descriptive qualitative design approach was applied on one oncology floor and an oncology clinic. Semi-structured interviews were conducted with mothers of children aged 1-12 with acute lymphoblastic leukaemia (ALL). Inductive thematic analysis approach was undertaken. Written consent was obtained from all participants.
Fifteen interviews were conducted with fifteen mothers. Four major themes reflect the different challenges parents and children face during the COVID-19 pandemic: children refusing to wear masks, social isolation, family relationship and financial concerns.
The findings of the current study present important data for health care professionals to help them understand the challenges faced by parents and children with leukaemia, especially during the COVID-19 pandemic.
This study suggests activating emotional support teams in hospitals. These teams can actively help mothers express their concerns and worries which might otherwise foster self-blame, guilt and isolation.
本研究旨在探讨照顾白血病患儿的家长的体验。本文仅重点报告参与研究的母亲们在 COVID-19 大流行背景下照顾白血病患儿所面临的挑战的访谈结果。
研究在约旦的一家医院进行，采用描述性定性设计方法，在一个肿瘤病房和一个肿瘤诊所进行。对 1-12 岁急性淋巴细胞白血病（ALL）患儿的母亲进行半结构式访谈。采用归纳主题分析方法。所有参与者均获得书面同意。
对 15 位母亲进行了 15 次访谈。四个主要主题反映了 COVID-19 大流行期间父母和孩子面临的不同挑战：孩子拒绝戴口罩、社会隔离、家庭关系和经济担忧。
本研究的结果为医疗保健专业人员提供了重要数据，帮助他们了解白血病患儿及其父母在 COVID-19 大流行期间面临的挑战。
本研究建议在医院激活情感支持团队。这些团队可以积极帮助母亲表达他们的担忧，否则可能会导致自责、内疚和孤立。
