Department of Infectious Diseases, Peter MacCallum Cancer Centre, Melbourne, Victoria, Australia.
NHMRC National Centre for Infections in Cancer, Sir Peter MacCallum Department of Oncology, University of Melbourne, Melbourne, Victoria, Australia.
J Paediatr Child Health. 2021 Jun;57(6):826-834. doi: 10.1111/jpc.15330. Epub 2021 Feb 3.
The Australian 'There is no place like home' project is implementing a paediatric low-risk febrile neutropenia (FN) programme across eight paediatric hospitals. We sought to identify the impact of the coronavirus disease 2019 (COVID-19) pandemic on programme implementation.
Paediatric oncology, infectious diseases and emergency medicine health-care workers and parent/carers were surveyed to explore the impact of the COVID-19 pandemic on home-based FN care. Online surveys were distributed nationally to health-care workers involved in care of children with FN and to parents or carers of children with cancer.
Surveys were completed by 78 health-care workers and 32 parents/carers. Overall, 95% of health-care workers had confidence in the safety of home-based FN care, with 35% reporting changes at their own hospitals in response to the pandemic that made them more comfortable with this model. Compared to pre-pandemic, >50% of parent/carers were now more worried about attending the hospital with their child and >80% were interested in receiving home-based FN care. Among both groups, increased telehealth access and acceptance of home-based care, improved patient quality of life and reduced risk of nosocomial infection were identified as programme enablers, while re-direction of resources due to COVID-19 and challenges in implementing change during a crisis were potential barriers.
There is strong clinician and parent/carer support for home-based management of low-risk FN across Australia. Changes made to the delivery of cancer care in response to the pandemic have generally increased acceptance for home-based treatments and opportunities exist to leverage these to refine the low-risk FN programme.
澳大利亚“无处可去,家是最好的”项目正在 8 家儿科医院实施小儿低危发热性中性粒细胞减少症(FN)项目。我们旨在确定 2019 年冠状病毒病(COVID-19)大流行对项目实施的影响。
对儿科肿瘤学、传染病学和急诊医学的医护人员以及患儿的父母/照顾者进行调查,以探讨 COVID-19 大流行对家庭 FN 护理的影响。全国范围内向参与儿童 FN 护理的医护人员和儿童癌症患儿的父母/照顾者在线分发调查。
共完成了 78 名医护人员和 32 名父母/照顾者的调查。总体而言,95%的医护人员对家庭 FN 护理的安全性有信心,35%的医护人员报告说,他们所在医院因大流行而做出了改变,使他们对这种模式更有信心。与大流行前相比,现在 >50%的父母/照顾者更担心带孩子去医院,而 >80%的父母/照顾者对接受家庭 FN 护理感兴趣。在这两个群体中,增加远程医疗服务的可及性和接受家庭护理、提高患者生活质量和降低医院感染风险被确定为项目实施的有利因素,而由于 COVID-19 重新调整资源以及在危机期间实施变革的挑战则是潜在的障碍。
澳大利亚各地的临床医生和患儿的父母/照顾者都强烈支持家庭管理小儿低危 FN。为应对大流行而对癌症护理的提供方式所做的改变普遍增加了对家庭治疗的接受程度,并且存在利用这些机会来完善低危 FN 项目的机会。