Hille Voss*, Netherlands Institute of Health Services Research (Nivel), Utrecht, the Netherlands.
Anique G.F.M. Vogel*, Maasveld, Koraal, Maastricht, the Netherlands.
Intellect Dev Disabil. 2021 Feb 1;59(1):39-54. doi: 10.1352/1934-9556-59.1.39.
In this article we describe how an advance care planning (ACP) program was developed, implemented, and evaluated. Our aim was to improve ACP in palliative care for people with intellectual disability (ID). The program was based on 10 competencies needed for ACP and was developed in a co-design process with people with ID, relatives, and professionals. The program was implemented in six ID care organizations in the Netherlands and consisted of an information pack, a training course, and an implementation interview about implementing ACP. Professionals indicated that their competencies had improved, particularly regarding communication and the application of ACP as a standard element in palliative care practice. This program therefore seems helpful in training ID care professionals in the competencies needed for ACP.
本文描述了如何开发、实施和评估预先医疗指示(ACP)计划。我们的目标是改善智障人士(ID)的姑息治疗中的 ACP。该计划基于 ACP 所需的 10 项能力,并与 ID 人士、家属和专业人士共同设计。该计划在荷兰的六个 ID 护理组织中实施,包括信息包、培训课程和关于实施 ACP 的实施访谈。专业人员表示,他们的能力有所提高,特别是在沟通和将 ACP 作为姑息护理实践的标准元素应用方面。因此,该计划似乎有助于培训 ID 护理专业人员掌握 ACP 所需的能力。