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发展、实施和评估针对智障人士姑息治疗专业人员的预先护理计划方案。

Development, Implementation, and Evaluation of an Advance Care Planning Program for Professionals in Palliative Care of People With Intellectual Disability.

机构信息

Hille Voss*, Netherlands Institute of Health Services Research (Nivel), Utrecht, the Netherlands.

Anique G.F.M. Vogel*, Maasveld, Koraal, Maastricht, the Netherlands.

出版信息

Intellect Dev Disabil. 2021 Feb 1;59(1):39-54. doi: 10.1352/1934-9556-59.1.39.

DOI:10.1352/1934-9556-59.1.39
PMID:33543280
Abstract

In this article we describe how an advance care planning (ACP) program was developed, implemented, and evaluated. Our aim was to improve ACP in palliative care for people with intellectual disability (ID). The program was based on 10 competencies needed for ACP and was developed in a co-design process with people with ID, relatives, and professionals. The program was implemented in six ID care organizations in the Netherlands and consisted of an information pack, a training course, and an implementation interview about implementing ACP. Professionals indicated that their competencies had improved, particularly regarding communication and the application of ACP as a standard element in palliative care practice. This program therefore seems helpful in training ID care professionals in the competencies needed for ACP.

摘要

本文描述了如何开发、实施和评估预先医疗指示(ACP)计划。我们的目标是改善智障人士(ID)的姑息治疗中的 ACP。该计划基于 ACP 所需的 10 项能力,并与 ID 人士、家属和专业人士共同设计。该计划在荷兰的六个 ID 护理组织中实施,包括信息包、培训课程和关于实施 ACP 的实施访谈。专业人员表示,他们的能力有所提高,特别是在沟通和将 ACP 作为姑息护理实践的标准元素应用方面。因此,该计划似乎有助于培训 ID 护理专业人员掌握 ACP 所需的能力。

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The All Together Group: Co-Designing a Toolkit of Approaches and Resources for End-of-Life Care Planning With People With Intellectual Disabilities in Social Care Settings.全体协作小组:与社会护理环境中的智障人士共同设计一套临终关怀规划方法与资源工具包。
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"It was one of those complicated cases": health practitioners' perspectives and practices of providing end-of-life care for people with profound intellectual and multiple disability.
“这是一个复杂的案例”:医疗保健从业者为患有严重智力和多重残疾的人提供临终关怀的观点和实践。
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