Center of Adolescent Medicine, Department of Paediatrics and Adolescent Medicine, Rigshospitalet, Copenhagen University Hospital, Copenhagen, Denmark.
Faculty of Health and Medical Sciences, University of Copenhagen, Copenhagen, Denmark.
J Adolesc Young Adult Oncol. 2021 Apr;10(2):142-147. doi: 10.1089/jayao.2020.0202. Epub 2021 Feb 18.
COVID-19 is a worldwide pandemic affecting populations by massive lockdowns, including strict precautions and quarantines. Research on the lives of adolescents and young adults (AYAs) with cancer during the COVID-19 pandemic is highly relevant to meet potential challenges regarding their physical and mental well-being. Therefore, the purpose of this study was to investigate how AYA cancer patients and survivors experience social isolation during the COVID-19 lockdown. Individual semistructured telephone interviews were performed with 13 AYA cancer patients and survivors aged 18-29 years. All participants were users of Kræftværket, a youth support center and social organization for AYAs with cancer at The University Hospital Rigshospitalet, Denmark. Data were analyzed by using thematic analysis. The following themes were found. The need for giving and receiving support, Difficulty of the community spirit, The lockdown's effect on recovery, Disrupted youth, and Being alone. The participants in this study experienced loneliness, anxiety, lack of psychosocial support, and lack of physical contact. In addition, lack of rehabilitation and lack of support during hospital visits, which may specifically influence the disease trajectory, were reported. Thus, health care professionals have an important task to follow up on the AYA's well-being during and after the COVID-19 lockdown. A positive side effect of the lockdown period was the experience of getting a respite to recover physically and mentally after cancer.
COVID-19 是一种全球性大流行疾病，通过大规模封锁对人群造成影响，包括严格的预防措施和隔离。研究 COVID-19 大流行期间青少年和青年癌症患者的生活情况与满足他们身心健康方面的潜在挑战息息相关。因此，本研究的目的是调查青少年癌症患者和幸存者在 COVID-19 封锁期间如何体验社会孤立。 对 13 名年龄在 18-29 岁的青少年癌症患者和幸存者进行了个人半结构化电话访谈。所有参与者均为丹麦哥本哈根大学医院里青少年癌症支持中心和社会组织 Kræftværket 的用户。采用主题分析对数据进行分析。 发现了以下主题。提供和接受支持的需求、社区精神的困难、封锁对康复的影响、被扰乱的青春和孤独感。 本研究的参与者经历了孤独、焦虑、缺乏社会心理支持和身体接触的缺失。此外，还报告了康复方面的不足以及在医院就诊期间缺乏支持，这可能会对疾病轨迹产生特定影响。因此，医疗保健专业人员在 COVID-19 封锁期间和之后有重要的任务来关注青少年的福祉。封锁期间的一个积极影响是经历了癌症后的身心恢复喘息机会。
