Covenant Health Palliative Institute, Grey Nuns Community Hospital, St. Marguerite Health Services Center, Edmonton, Alberta, Canada.
Standards and Evidence Development Team, Global Programs Department, Health Standards Organization, Ottawa, Ontario, Canada.
J Palliat Med. 2021 Sep;24(9):1342-1350. doi: 10.1089/jpm.2020.0679. Epub 2021 Feb 18.
Lack of consistency in palliative care language can serve as barriers when designing, delivering, and accessing high-quality palliative care services. To develop a consensus-driven and evidence-based palliative care glossary for the Health Standards Organization Palliative Care Services National Standard of Canada (CAN/HSO 13001:2020). Content analysis of the Palliative Care Services standard was used to refine a list of terms. Environmental scan and rapid review were used for identification of concepts and definitions. Two meetings of consultation based on the modified Delphi approach took place among a working committee consisting of 12 health care providers, administrators, academics, and patient/family representatives. Palliative approach to care, quality of life, pain and symptom management, caregivers, palliative care, life-limiting illness, and serious illness were defined by modification/adoption of existing definitions. A glossary of key palliative care terms was developed and included in the HSO Palliative Care Services standard, which will facilitate communication using consistent language across care settings.
在设计、提供和获得高质量的姑息治疗服务时，姑息治疗语言缺乏一致性可能会成为障碍。 为了为加拿大健康标准组织姑息治疗服务国家标准（CAN/HSO 13001:2020）制定一个基于共识和循证的姑息治疗词汇表。 对姑息治疗服务标准进行内容分析，以完善术语列表。 进行环境扫描和快速审查，以确定概念和定义。 由 12 名医疗保健提供者、管理人员、学者和患者/家庭代表组成的工作组，根据修改后的德尔菲方法进行了两次会议咨询。 通过修改/采用现有定义，对姑息治疗方法、生活质量、疼痛和症状管理、护理人员、姑息治疗、生命有限的疾病和严重疾病进行了定义。 制定了一份关键姑息治疗术语词汇表，并将其纳入 HSO 姑息治疗服务标准，这将有助于在护理环境中使用一致的语言进行沟通。
