• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利：CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法，用中文像聊天一样搜索，搜遍4000万医学文献。AI智能推荐，让科研检索更轻松。

立即免费搜索

文件翻译

保留排版，准确专业，支持PDF/Word/PPT等文件格式，支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述，25分钟生成高质量综述，智能提取关键信息，辅助科研写作。

立即免费体验

居家个性化关怀模式——患者、亲属及护士对专科姑息治疗的体验：一项综合文献综述

A Personalised Caring Approach at Home-Patients, Relatives and Nurses' Experiences of Specialised Palliative Care: An Integrative Literature Review.

作者信息

Osberg Ferm Liselott, Karlsson Margareta, Kasén Anne, Pennbrant Sandra

机构信息

Department of Health Sciences, University West, Trollhättan, Sweden.

Palliative Unit, NU-Healthcare, Trollhättan, Sweden.

出版信息

Nurs Open. 2025 Feb;12(2):e70155. doi: 10.1002/nop2.70155.

DOI:10.1002/nop2.70155
PMID:39887669
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11782158/
Abstract

AIM

This study aimed to describe patients, relatives and nurses' experiences of specialised palliative home care.

DESIGN

Integrated literature review.

METHODS

The review was performed using the PRISMA 2020 Statement. The searches were conducted in Cinahl, PubMed and Scopus.

RESULTS

Eighteen articles were selected. An overall theme 'co-creation for personalised home care' emerged, based on three categories: 'Safe and secure care', 'Care based on wishes and needs' and 'Relatives' caring role'. Patients, relatives and nurses' experiences showed that co-creation was an important strategy for achieving goals and enabling patients to remain at home despite illness and limited life expectancy.

CONCLUSION

Co-creation becomes a prerequisite for personalised home care and enabled through collaboration and learning between patients, relatives and nurses.

PATIENT OR PUBLIC CONTRIBUTION

This article is an overview of how patients, relatives and nurses experience care at home, supported by a specialised palliative care unit, and the result showed that co-creation enables personalised care.

摘要

目的

本研究旨在描述患者、亲属及护士在专科姑息家庭护理方面的体验。

设计

整合文献综述。

方法

本综述采用PRISMA 2020声明进行。检索在护理学与健康领域数据库（Cinahl）、医学期刊数据库（PubMed）和文摘与引文数据库（Scopus）中进行。

结果

筛选出18篇文章。基于“安全可靠的护理”“基于愿望和需求的护理”“亲属的护理角色”这三个类别，出现了一个总体主题“共同创造个性化家庭护理”。患者、亲属及护士的体验表明，共同创造是实现目标以及使患者尽管患病且预期寿命有限仍能居家的重要策略。

结论

共同创造成为个性化家庭护理的先决条件，并通过患者、亲属和护士之间的协作与学习得以实现。

患者或公众贡献

本文概述了在专科姑息治疗单位的支持下，患者、亲属及护士如何体验居家护理，结果表明共同创造能够实现个性化护理。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e149/11782158/0c6d43162ffa/NOP2-12-e70155-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e149/11782158/075942fc1533/NOP2-12-e70155-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e149/11782158/0c6d43162ffa/NOP2-12-e70155-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e149/11782158/075942fc1533/NOP2-12-e70155-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e149/11782158/0c6d43162ffa/NOP2-12-e70155-g001.jpg

相似文献

1
A Personalised Caring Approach at Home-Patients, Relatives and Nurses' Experiences of Specialised Palliative Care: An Integrative Literature Review.居家个性化关怀模式——患者、亲属及护士对专科姑息治疗的体验：一项综合文献综述
Nurs Open. 2025 Feb;12(2):e70155. doi: 10.1002/nop2.70155.
2
Supporting relatives when general palliative care is provided at home- a focus group study based on nurses' experiences.在家中提供一般姑息治疗时对亲属的支持——一项基于护士经验的焦点小组研究
BMC Palliat Care. 2025 Apr 21;24(1):108. doi: 10.1186/s12904-025-01744-z.
3
Ethical sensitivity and perceptiveness in palliative home care through co-creation.通过共同创造提高姑息治疗居家护理中的伦理敏感性和洞察力。
Nurs Ethics. 2020 Mar;27(2):446-460. doi: 10.1177/0969733019849464. Epub 2019 Jul 7.
4
Cocreation as a Caring Phenomenon: Nurses' Experiences in Palliative Home Care.作为一种关怀现象的共同创造：护士在姑息家庭护理中的经历。
Holist Nurs Pract. 2019 Sep/Oct;33(5):273-284. doi: 10.1097/HNP.0000000000000342.
5
Dealing with ethical and existential issues at end of life through co-creation.通过共创来应对生命末期的伦理和存在问题。
Nurs Ethics. 2020 Jun;27(4):1012-1031. doi: 10.1177/0969733019874496. Epub 2019 Sep 15.
6
The impact of implementing an educational intervention to enhance a family-oriented approach in specialised palliative home care: A quasi-experimental study.实施教育干预以加强专科姑息家庭护理中以家庭为导向的方法的影响：一项准实验研究。
Scand J Caring Sci. 2019 Jun;33(2):342-350. doi: 10.1111/scs.12628. Epub 2018 Nov 29.
7
Experiences of healthcare professionals providing palliative care in home settings - a scoping review.医疗保健专业人员在家庭环境中提供姑息治疗的经验——一项范围综述。
BMC Palliat Care. 2025 Mar 28;24(1):83. doi: 10.1186/s12904-025-01728-z.
8
Patients', relatives' and nurses' experiences of palliative care on an advanced care ward in a nursing home setting in Norway.挪威养老院高级护理病房中，患者、亲属和护士对姑息治疗的体验。
Nurs Open. 2023 Apr;10(4):2464-2476. doi: 10.1002/nop2.1503. Epub 2022 Nov 30.
9
Nurses' experiences of compassion when giving palliative care at home.护士在家中提供姑息治疗时的同情心体验。
Nurs Ethics. 2020 Feb;27(1):194-205. doi: 10.1177/0969733019839218. Epub 2019 Apr 25.
10
Acting with dedication and expertise: Relatives' experience of nurses' provision of care in a palliative unit.敬业且专业地履行职责：亲属对姑息治疗病房护士护理工作的体验
Palliat Support Care. 2015 Dec;13(6):1547-58. doi: 10.1017/S1478951513000825. Epub 2013 Nov 4.

本文引用的文献

1
What Aspects of Quality of Life are Important from Palliative Care Patients' Perspectives? A Framework Analysis to Inform Preference-Based Measures for Palliative and End-of-Life Settings.从姑息治疗患者的角度来看，哪些方面的生活质量很重要？一个框架分析，为姑息治疗和生命终末期环境下的偏好测量提供信息。
Patient. 2024 Jan;17(1):39-52. doi: 10.1007/s40271-023-00651-w. Epub 2023 Nov 17.
2
Preferences for home care to enable home death among adult patients with cancer in late palliative phase - a grounded theory study.晚期姑息治疗阶段癌症成年患者对居家护理以实现居家死亡的偏好——一项扎根理论研究。
BMC Palliat Care. 2022 Apr 11;21(1):49. doi: 10.1186/s12904-022-00939-y.
3
Revised recommendations on standards and norms for palliative care in Europe from the European Association for Palliative Care (EAPC): A Delphi study.
欧洲姑息治疗协会（EAPC）修订的欧洲姑息治疗标准和规范建议：一项德尔菲研究。
Palliat Med. 2022 Apr;36(4):680-697. doi: 10.1177/02692163221074547. Epub 2022 Feb 3.
4
Home care nurses more positive about the palliative care that is provided and their own competence than hospital nurses: a nationwide survey.居家护士比医院护士更能积极看待所提供的姑息治疗和自身能力：一项全国性调查。
BMC Palliat Care. 2021 Oct 28;20(1):170. doi: 10.1186/s12904-021-00866-4.
5
Katie Eriksson's caring theories. Part 1. The caritative caring theory, the multidimensional health theory and the theory of human suffering.凯蒂·埃里克森的关怀理论。第 1 部分。关怀性关怀理论、多维健康理论和人类苦难理论。
Scand J Caring Sci. 2022 Sep;36(3):782-790. doi: 10.1111/scs.13036. Epub 2021 Oct 5.
6
The PRISMA 2020 statement: An updated guideline for reporting systematic reviews.《PRISMA 2020声明：报告系统评价的更新指南》
J Clin Epidemiol. 2021 Jun;134:178-189. doi: 10.1016/j.jclinepi.2021.03.001. Epub 2021 Mar 29.
7
Definitions of Palliative Care Terms: A Consensus-Oriented Decision-Making Process.姑息治疗术语定义：一种共识导向的决策过程。
J Palliat Med. 2021 Sep;24(9):1342-1350. doi: 10.1089/jpm.2020.0679. Epub 2021 Feb 18.
8
Dignity and loss of dignity: Experiences of older women living with incurable cancer at home.尊严与尊严的丧失：身患绝症的老年女性在家中的生活体验。
Health Care Women Int. 2020 Sep;41(9):1036-1058. doi: 10.1080/07399332.2020.1797035. Epub 2020 Oct 21.
9
What Variables Contribute to the Achievement of a Preferred Home Death for Cancer Patients in Receipt of Home-Based Palliative Care in Canada?哪些变量有助于在加拿大接受居家姑息治疗的癌症患者实现首选的居家死亡？
Cancer Nurs. 2021;44(3):214-222. doi: 10.1097/NCC.0000000000000863.
10
Trends analysis of specialized palliative care services in 51 countries of the WHO European region in the last 14 years.过去 14 年里，世卫组织欧洲区域 51 个国家的专门姑息治疗服务趋势分析。
Palliat Med. 2020 Sep;34(8):1044-1056. doi: 10.1177/0269216320931341. Epub 2020 Jun 10.