居家个性化关怀模式——患者、亲属及护士对专科姑息治疗的体验：一项综合文献综述
A Personalised Caring Approach at Home-Patients, Relatives and Nurses' Experiences of Specialised Palliative Care: An Integrative Literature Review.
作者信息
Osberg Ferm Liselott, Karlsson Margareta, Kasén Anne, Pennbrant Sandra
机构信息
Department of Health Sciences, University West, Trollhättan, Sweden.
Palliative Unit, NU-Healthcare, Trollhättan, Sweden.
出版信息
Nurs Open. 2025 Feb;12(2):e70155. doi: 10.1002/nop2.70155.
AIM
This study aimed to describe patients, relatives and nurses' experiences of specialised palliative home care.
DESIGN
Integrated literature review.
METHODS
The review was performed using the PRISMA 2020 Statement. The searches were conducted in Cinahl, PubMed and Scopus.
RESULTS
Eighteen articles were selected. An overall theme 'co-creation for personalised home care' emerged, based on three categories: 'Safe and secure care', 'Care based on wishes and needs' and 'Relatives' caring role'. Patients, relatives and nurses' experiences showed that co-creation was an important strategy for achieving goals and enabling patients to remain at home despite illness and limited life expectancy.
CONCLUSION
Co-creation becomes a prerequisite for personalised home care and enabled through collaboration and learning between patients, relatives and nurses.
PATIENT OR PUBLIC CONTRIBUTION
This article is an overview of how patients, relatives and nurses experience care at home, supported by a specialised palliative care unit, and the result showed that co-creation enables personalised care.
目的
本研究旨在描述患者、亲属及护士在专科姑息家庭护理方面的体验。
设计
整合文献综述。
方法
本综述采用PRISMA 2020声明进行。检索在护理学与健康领域数据库（Cinahl）、医学期刊数据库（PubMed）和文摘与引文数据库（Scopus）中进行。
结果
筛选出18篇文章。基于“安全可靠的护理”“基于愿望和需求的护理”“亲属的护理角色”这三个类别，出现了一个总体主题“共同创造个性化家庭护理”。患者、亲属及护士的体验表明，共同创造是实现目标以及使患者尽管患病且预期寿命有限仍能居家的重要策略。
结论
共同创造成为个性化家庭护理的先决条件，并通过患者、亲属和护士之间的协作与学习得以实现。
患者或公众贡献
本文概述了在专科姑息治疗单位的支持下，患者、亲属及护士如何体验居家护理，结果表明共同创造能够实现个性化护理。
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