Memory Clinic, Mercer's Institute for Research on Ageing, St. James's Hospital, James's Street, Dublin 8., Dublin, Ireland.
Mercer's Institute for Research on Ageing, St. James's Hospital, James's Street, Dublin 8., Dublin, Ireland.
Eur Geriatr Med. 2021 Aug;12(4):881-885. doi: 10.1007/s41999-021-00464-w. Epub 2021 Feb 20.
Exploring family members' attitudes to an Alzheimer's disease diagnosis compared to that of a study 20 years prior by Maguire et al. (BMJ 313:529-530, 1996).
The survey was a replica of that completed 20 years prior in the same department by Maguire et al. (BMJ 313:529-530, 1996). With ethics approval and consent, family members were surveyed regarding their attitudes towards a dementia diagnosis. Completed by doctors with 100 consecutive respondents accompanying patients to scheduled memory clinic appointments. Themes were generated, results compiled and compared to the previous study.
Respondents are now over four times more likely to favour disclosure over non-disclosure to a patient (chi-squared 68.142, p < 0.0001). A substantial decrease is evident in those listing fear of evoking a negative reaction. Accordingly, there is an increase in those referring to the benefits of disclosure.
The emerged theme was that of autonomy versus paternalism, with attitude shift reflecting that patient privacy is an established patient right, taking precedence over paternalistic preferences.
探讨与 Maguire 等人（1996 年，《英国医学杂志》313:529-530）20 年前的研究相比，家庭成员对阿尔茨海默病诊断的态度。
该调查是 Maguire 等人（1996 年，《英国医学杂志》313:529-530）在同一部门 20 年前完成的调查的复制品。在获得伦理批准和同意的情况下，对家庭成员进行了关于他们对痴呆症诊断的态度的调查。由医生完成，对 100 名连续的陪同患者预约记忆诊所的患者进行了调查。生成主题，汇总结果并与之前的研究进行比较。
与不向患者透露相比，现在表示赞成透露的受访者可能性增加了四倍多（卡方检验 68.142，p<0.0001）。那些列出害怕引起负面反应的人数明显减少。相应地，那些提到透露的好处的人数有所增加。
出现的主题是自主权与家长主义之间的对抗，态度的转变反映了患者隐私是一项既定的患者权利，优先于家长主义的偏好。
