在记忆门诊就诊的患者对阿尔茨海默病的披露有何偏好？
What are the preferences of patients attending a memory clinic for disclosure of Alzheimer's disease?
机构信息
Centre de Gérontologie, Hôpital Sainte Périne, AP-HP, 75016Paris, France.
Département Hospitalier d'Epidémiologie et de Santé Publique, Hôpital Sainte Périne, AP-HP, 75016 Paris, France; INSERM, U1168, VIMA: Aging and Chronic Diseases. Epidemiological and Public Health Approaches, Villejuif 94807, France; Université de Versailles St-Quentin-en-Yvelines, UMR-S 1168, 78180 Montigny le Bretonneux, France.
出版信息
Rev Neurol (Paris). 2018 Sep-Oct;174(7-8):564-570. doi: 10.1016/j.neurol.2017.10.016. Epub 2018 Apr 24.
BACKGROUND/AIMS: This report shares and discusses the collected personal preferences of patients attending a memory clinic for disclosure of a potential Alzheimer's disease (AD) diagnosis.
METHODS
In this prospective study of outpatients attending a single memory clinic over a 6-year period (March 2004-October 2010), doctors collected their patients' wishes (willingness to be informed, motivation, presence of the family) through a standardized procedure.
RESULTS
Of the 1005 patients questioned throughout the study period-with a final diagnosis of dementia for 480 of them-858 (85.3%) wished to be informed of an AD diagnosis, whereas 72 (7.2%) did not and 75 (7.5%) were not sure. Older age and reduced cognitive functioning were independently associated with a preference to not be informed of a potential AD diagnosis.
CONCLUSION
Our study provides evidence of the willingness of most patients to know the truth vis-à-vis AD and also offers some insight into their motivations.
背景/目的：本报告分享并讨论了在记忆门诊就诊的患者对披露潜在阿尔茨海默病（AD）诊断的个人偏好。
方法
在这项对单家记忆门诊的门诊患者进行的前瞻性研究中，医生通过标准化程序收集了患者的意愿（是否愿意获得信息、动机、家属在场情况）。
结果
在整个研究期间（2004 年 3 月至 2010 年 10 月），对 1005 名患者进行了询问，其中 480 名患者最终被诊断为痴呆症。858 名（85.3%）患者希望被告知 AD 诊断，而 72 名（7.2%）患者表示不愿意，75 名（7.5%）患者表示不确定。年龄较大和认知功能下降与不希望获得潜在 AD 诊断的意愿独立相关。
结论
我们的研究提供了大多数患者愿意了解 AD 真相的证据，并为他们的动机提供了一些见解。
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