Maaskant J M, Jongerden I P, Bik J, Joosten M, Musters S, Storm-Versloot M N, Wielenga J, Eskes A M
Emma Children's Hospital, Amsterdam UMC, University of Amsterdam, Amsterdam, the Netherlands.
Department of Public and Occupational Health, Amsterdam Public Health research institute, Amsterdam UMC, VU University, Amsterdam, the Netherlands.
Int J Nurs Stud. 2021 May;117:103858. doi: 10.1016/j.ijnurstu.2020.103858. Epub 2020 Dec 24.
The outbreak of the COVID-19 pandemic influenced family-centred care dramatically due to restricting visiting policies. In this new situation, nurses were challenged to develop new approaches to involve family members in patient care. A better understanding of these changes and the experiences of nurses is essential to make an adaptation of procedures, and to secure a family-centred approach in care as much as possible.
The aim of this study was to investigate how family involvement had taken place, and to explore the experiences of nurses with family involvement during the COVID-19 outbreak. In addition, we aimed to formulate recommendations for the involvement of family.
We conducted a qualitative study using patient record review and focus-group interviews between April and July 2020. We reviewed records of patients with confirmed COVID-19, who were admitted to the COVID-19 wards at two affiliated university hospitals in the Netherlands. All records were searched for notations referring to family involvement. In two focus-groups, nurses who worked at the COVID-19 wards were invited to share their experiences. The Rigorous and Accelerated Data Reduction (RADaR) method was used to collect, reduce and analyse the data.
In total, 189 patient records were reviewed and nine nurses participated in the focus-group meetings. Patient records revealed infrequent and often unstructured communication with focus on physical condition. Nurses confirmed that communication with family was far less than before and that the physical condition of the patient was predominant. The involvement of family in care was limited to practicalities, although more involvement was described in end-of-life situations. Nurses experienced moral distress due to the visiting restrictions, though some acknowledged that they had experienced the direct patient care so intense and burdensome, that family contact simply felt too much.
The communication with and involvement of family in hospital care changed enormously during the COVID-19 outbreak. Based on the identified themes, we formulated recommendations that may be helpful for family-centered care in hospitals during periods of restricted visiting policy.
由于探视政策受限,新冠疫情的爆发对以家庭为中心的护理产生了巨大影响。在这种新形势下,护士面临着开发新方法以使家庭成员参与患者护理的挑战。更好地理解这些变化以及护士的经历对于调整程序并尽可能确保护理中以家庭为中心的方法至关重要。
本研究的目的是调查家庭参与是如何发生的,并探讨新冠疫情爆发期间护士在家庭参与方面的经历。此外,我们旨在为家庭参与制定建议。
我们在2020年4月至7月期间进行了一项定性研究,采用了患者病历审查和焦点小组访谈。我们审查了荷兰两家附属医院新冠病房收治的确诊新冠患者的病历。在所有病历中搜索提及家庭参与的记录。在两个焦点小组中,邀请了在新冠病房工作的护士分享他们的经历。采用严格加速数据缩减(RADaR)方法收集、缩减和分析数据。
总共审查了189份患者病历,9名护士参加了焦点小组会议。患者病历显示与家庭的沟通不频繁且往往无组织,主要关注身体状况。护士证实与家庭的沟通比以前少得多,且患者的身体状况是首要的。家庭对护理的参与仅限于实际事务,尽管在临终情况下描述了更多的参与。护士因探视限制而经历道德困扰,不过一些人承认他们直接护理患者的经历非常紧张且负担沉重,以至于觉得与家庭接触太多了。
在新冠疫情爆发期间,医院护理中与家庭的沟通和家庭的参与发生了巨大变化。基于确定的主题,我们制定了一些建议,这些建议可能有助于在探视政策受限期间医院以家庭为中心的护理。