通过医务人员收集癌症患者观点和偏好的新方法。
New Approach for Collecting Cancer Patients' Views and Preferences Through Medical Staff.
作者信息
Takayama Tomoko, Inoue Yoji, Yokota Rie, Hayakawa Masayo, Yamaki Chikako, Toh Yasushi
机构信息
Cancer Information Service Division, Center for Cancer Control and Information Services, National Cancer Center, Tokyo, Japan.
Department of Health Communication, Graduate School of Medicine, The University of Tokyo, Tokyo, Japan.
出版信息
Patient Prefer Adherence. 2021 Feb 18;15:375-385. doi: 10.2147/PPA.S292239. eCollection 2021.
PURPOSE
It is crucial for health professionals to understand patients' and families' views and preferences (PVPs) to enhance their adherence to treatments and subsequent satisfaction. Regularly and consistently collecting comprehensive information on the needs and concerns of patients/families and utilizing the information is vital for improving clinical practice and the healthcare environment. As an initial approach, this study aimed to develop a new system for appropriately collecting PVPs regarding cancer from nationwide medical staff and consider the potential utilization of PVPs in clinical practice.
METHODS
Web-based anonymous surveys were conducted with medical staff in nationwide cancer care hospitals in Japan. The surveys queried the questions, values, desires, and experiences expressed by cancer patients or their families on five topics, namely two cancer sites (colorectal and esophageal cancers) and three symptoms and signs (lymphedema, urinary symptoms, and tingling/numbness/pain) within the past year. The PVPs were compared to the five topics and staff medical specialties, and those on tingling/numbness/pain were analyzed qualitatively.
RESULTS
Among the 904 medical staff who responded to this survey, the PVPs encountered by the staff differed according to the topic and staff medical specialty. Tingling/numbness/pain was the most frequently encountered symptom, and urinary symptoms were the least encountered. Only half or fewer of the medical staff had information available regarding urinary symptoms and tingling/numbness/pain. Further, qualitative content analysis of the expressed PVPs regarding tingling/numbness/pain raised clinical questions on this topic that led to the construction of a "Questions & Answers" section on a public website in Japan.
CONCLUSION
This study suggests that collecting PVPs through nationwide cancer-related medical staff might be an efficient way to understand the specific requirements of patients/families. It would also be possible to document PVP trends according to changes in the environments of patients/families by nationwide, consistent, and continuous PVP collection.
目的
对于医疗保健专业人员而言，了解患者及其家属的观点和偏好（PVPs）对于提高他们对治疗的依从性以及随后的满意度至关重要。定期且持续地收集有关患者/家属需求和担忧的全面信息并加以利用，对于改善临床实践和医疗保健环境至关重要。作为初步方法，本研究旨在开发一种新系统，以适当地收集来自全国医务人员关于癌症的PVPs，并考虑PVPs在临床实践中的潜在用途。
方法
对日本全国癌症护理医院的医务人员进行基于网络的匿名调查。调查询问了癌症患者或其家属在过去一年中就五个主题所表达的问题、价值观、愿望和经历，这五个主题分别是两个癌症部位（结直肠癌和食管癌）以及三种症状和体征（淋巴水肿、泌尿系统症状以及刺痛/麻木/疼痛）。将PVPs与这五个主题以及医务人员的专业进行比较，并对关于刺痛/麻木/疼痛的PVPs进行定性分析。
结果
在回复此调查的904名医务人员中，医务人员遇到的PVPs因主题和医务人员专业而异。刺痛/麻木/疼痛是最常遇到的症状，而泌尿系统症状是最少遇到的。只有一半或更少的医务人员掌握有关泌尿系统症状和刺痛/麻木/疼痛的信息。此外，对所表达的关于刺痛/麻木/疼痛的PVPs进行的定性内容分析提出了关于该主题的临床问题，这导致在日本的一个公共网站上构建了一个“问答”板块。
结论
本研究表明，通过全国与癌症相关的医务人员收集PVPs可能是了解患者/家属具体需求的有效方式。通过全国范围内持续一致地收集PVPs，还可以根据患者/家属环境的变化记录PVPs趋势。
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