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在脆性X综合征患者的门诊牙周治疗中使用带图片的替代性沟通方式。

Use of alternative communication with pictures for outpatient periodontal treatment in fragile X syndrome patients.

作者信息

Ferreira Rafael, Zink Adriana Gledys, Santos Paulo Sérgio da Silva

机构信息

Discipline of Periodontics and Dental Care for Patients with Special Needs, School of Dentistry, Federal University of Mato Grosso do Sul, Campo Grande, Mato Grosso do Sul, Campo Grande, MS, Brazil.

Anhanguera University, Stomatology, Pathology and Radiology, Bauru School of Dentistry, University of São Paulo, São Paulo, Brazil.

出版信息

J Indian Soc Periodontol. 2021 Jan-Feb;25(1):70-74. doi: 10.4103/jisp.jisp_257_19. Epub 2020 Sep 21.

Abstract

The purpose of this article is to discuss the clinical management and behavior during periodontal treatment in two patients with fragile X syndrome (FXS) using alternative communication with pictures (ACP). Both patients had a history of previous dental care only possible under general anesthesia. The ACP was used to anticipate the activities to be carried out, promoting ambiance, improving the professional-patient communication, and decreasing the stress of the patient. It was possible to carry out outpatient care without oral sedation and containment/physical restraint in both patients, being surpassed the communicative and behavioral difficulties. These case reports allow us to re-think dental care under general anesthesia or other invasive methods for patients with FXS. Therefore, the ACP is an important mediator tool that can facilitate the insertion and the management of patients with FXS, allowing the dental care outpatient clinic to promote oral health and quality of life for these patients, improving adherence to periodontal treatment and the periodontal maintenance for oral hygiene.

摘要

本文旨在探讨两名脆性X综合征(FXS)患者在牙周治疗期间使用图片辅助沟通(ACP)的临床管理及行为表现。两名患者既往均只有在全身麻醉下才能接受牙科护理。ACP被用于预期即将开展的活动、营造氛围、改善医患沟通并减轻患者的压力。两名患者均得以在无需口服镇静剂以及无约束/身体限制的情况下接受门诊护理,克服了沟通和行为方面的困难。这些病例报告促使我们重新思考为FXS患者实施全身麻醉或其他侵入性方法的牙科护理方式。因此,ACP是一种重要的调解工具,可促进FXS患者的接纳和管理,使牙科护理门诊能够促进这些患者的口腔健康和生活质量,提高对牙周治疗的依从性以及口腔卫生的牙周维护。

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本文引用的文献

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Oral hygiene interventions for people with intellectual disabilities.针对智障人士的口腔卫生干预措施。
Cochrane Database Syst Rev. 2019 May 31;5(5):CD012628. doi: 10.1002/14651858.CD012628.pub2.
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CARE guidelines for case reports: explanation and elaboration document.病例报告的CARE指南:解释与阐述文件。
J Clin Epidemiol. 2017 Sep;89:218-235. doi: 10.1016/j.jclinepi.2017.04.026. Epub 2017 May 18.
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Oral manifestations in a group of adults with autism spectrum disorder.自闭症谱系障碍成人组的口腔表现。
Med Oral Patol Oral Cir Bucal. 2012 May 1;17(3):e415-9. doi: 10.4317/medoral.17573.

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