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社交媒体在先天性马蹄内翻足中的作用:信息共享与社会支持。

The role of social media in clubfoot: information sharing and social support.

作者信息

Hanna Gabriel, Batko Brian D, Potter James, Ippolito Joseph, Edobor-Osula Folorunsho

机构信息

Department of Orthopaedic Surgery, New Jersey Medical School, Newark, USA.

出版信息

J Child Orthop. 2021 Feb 1;15(1):81-88. doi: 10.1302/1863-2548.15.200176.

DOI:10.1302/1863-2548.15.200176
PMID:33643463
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7907770/
Abstract

PURPOSE

Clubfoot is the most common congenital foot deformity in children. Caregivers often seek medical information on the internet. The aim of the study was to characterize how social media is used by caregivers to access medical information.

METHODS

A search was performed on Facebook, Twitter and YouTube platforms. Information was quantitatively assessed. Comments were qualitatively assessed, and the Kruskal-Wallis test was used to study thematic comment distribution.

RESULTS

In total, 58 Facebook groups and pages, 109 YouTube accounts and ten Twitter accounts related to clubfoot were discovered from 2007 to 2019. Facebook groups and pages had a collective 56 123 members and 80 544 total likes, respectively. YouTube had a collective 3 280 454 views, with 54 969 total comments throughout the accounts. Comment themes most commonly included sharing information and advice (38.7%), appreciation and success stories (12.8%), emotional support (12.7%) and social media as a second opinion (11.9%). Facebook groups contained a significantly higher number of comments related to 'social media as a second opinion' compared with Facebook pages (p = 0.001), Twitter (p = 0.016) and YouTube (p < 0.0001) while YouTube contained a significantly lower number of comments related to 'sharing information' compared with Facebook groups, pages and Twitter (p < 0.0001).

CONCLUSION

Social media continues to be a growing tool for information sharing and the findings of this study highlight the importance placed by caregivers on the advice of their peers. The online presence of caregivers may represent an opportunity for orthopaedic surgeons to communicate with patients and help them make informed decisions.

LEVEL OF EVIDENCE

IV.

摘要

目的

马蹄内翻足是儿童中最常见的先天性足部畸形。护理人员经常在互联网上寻求医疗信息。本研究的目的是描述护理人员如何利用社交媒体获取医疗信息。

方法

在脸书、推特和优兔平台上进行搜索。对信息进行定量评估。对评论进行定性评估,并使用克鲁斯卡尔 - 沃利斯检验来研究主题评论分布。

结果

在2007年至2019年期间,共发现58个与马蹄内翻足相关的脸书群组和页面、109个优兔账户以及10个推特账户。脸书群组和页面分别有56123名成员和80544个总赞数。优兔的视频总观看量为3280454次,各账户的评论总数为54969条。评论主题最常见的包括分享信息和建议(38.7%)、感谢和成功故事(12.8%)、情感支持(12.7%)以及将社交媒体作为第二种意见(11.9%)。与脸书页面(p = 0.001)、推特(p = 0.016)和优兔(p < 0.0001)相比,脸书群组中与“将社交媒体作为第二种意见”相关的评论数量显著更多,而与脸书群组、页面和推特相比,优兔中与“分享信息”相关的评论数量显著更少(p < 0.0001)。

结论

社交媒体仍然是一个不断发展的信息共享工具,本研究结果突出了护理人员对同伴建议的重视。护理人员在网络上的存在可能为骨科医生与患者沟通并帮助他们做出明智决策提供了一个机会。

证据级别

四级

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1603/7907770/a0bd39fc850b/jco-15-81-g0006.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1603/7907770/2eb97eef31ff/jco-15-81-g0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1603/7907770/456c29cda395/jco-15-81-g0002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1603/7907770/12cb2071cbbc/jco-15-81-g0003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1603/7907770/f30a250b7b7e/jco-15-81-g0004.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1603/7907770/be29dbf1c72e/jco-15-81-g0005.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1603/7907770/a0bd39fc850b/jco-15-81-g0006.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1603/7907770/2eb97eef31ff/jco-15-81-g0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1603/7907770/456c29cda395/jco-15-81-g0002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1603/7907770/12cb2071cbbc/jco-15-81-g0003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1603/7907770/f30a250b7b7e/jco-15-81-g0004.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1603/7907770/be29dbf1c72e/jco-15-81-g0005.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1603/7907770/a0bd39fc850b/jco-15-81-g0006.jpg

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本文引用的文献

1
YouTube as an information source for clubfoot: a quality analysis of video content.YouTube 作为足内翻信息源:视频内容的质量分析。
J Pediatr Orthop B. 2020 Jul;29(4):375-378. doi: 10.1097/BPB.0000000000000694.
2
The role of social media in selective dorsal rhizotomy for children: information sharing and social support.社交媒体在儿童选择性背根切断术中的作用:信息共享与社会支持。
Childs Nerv Syst. 2019 Nov;35(11):2179-2185. doi: 10.1007/s00381-019-04197-x. Epub 2019 May 11.
3
Systematic review and meta-analysis of global birth prevalence of clubfoot: a study protocol.
家长对马蹄内翻足患儿支具依从性的担忧:在脸书上寻求支持
Cureus. 2023 Aug 19;15(8):e43761. doi: 10.7759/cureus.43761. eCollection 2023 Aug.
4
Social media communities for patients and families affected by congenital pediatric surgical conditions.先天性儿科手术条件影响的患者和家庭的社交媒体社区。
Pediatr Surg Int. 2022 Jul;38(7):1047-1055. doi: 10.1007/s00383-022-05139-6. Epub 2022 May 19.
5
Developmental Dysplasia of the Hip: How Does Social Media Influence Patients and Caregivers Seeking Information?发育性髋关节发育不良:社交媒体如何影响寻求信息的患者及护理人员?
Children (Basel). 2021 Sep 29;8(10):869. doi: 10.3390/children8100869.
6
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Pediatr Surg Int. 2022 Jan;38(1):43-50. doi: 10.1007/s00383-021-05022-w. Epub 2021 Sep 23.
7
The Impact of the Digital Age and Social Media on Connecting the Clubfoot Community.数字时代和社交媒体对马蹄内翻足群体交流的影响。
Cureus. 2021 Jul 31;13(7):e16780. doi: 10.7759/cureus.16780. eCollection 2021 Jul.
全球先天性马蹄内翻足出生患病率的系统评价和荟萃分析:一项研究方案
BMJ Open. 2018 Mar 6;8(3):e019246. doi: 10.1136/bmjopen-2017-019246.
4
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J Pediatr Orthop. 2017 Oct/Nov;37(7):e436-e439. doi: 10.1097/BPO.0000000000001032.
5
Parent's use of the Internet in the search for healthcare information and subsequent impact on the doctor-patient relationship.家长利用互联网搜索医疗保健信息及其对医患关系的后续影响。
Ir J Med Sci. 2017 Nov;186(4):821-826. doi: 10.1007/s11845-017-1555-6. Epub 2017 Jan 27.
6
Social media for patients: benefits and drawbacks.面向患者的社交媒体:益处与弊端
Curr Rev Musculoskelet Med. 2017 Mar;10(1):141-145. doi: 10.1007/s12178-017-9394-7.
7
The Role of Online Social Support in Supporting and Educating Parents of Young Children With Special Health Care Needs in the United States: A Scoping Review.在线社会支持在美国为有特殊医疗需求幼儿的家长提供支持和教育方面的作用:一项范围综述。
J Med Internet Res. 2016 Dec 22;18(12):e333. doi: 10.2196/jmir.6722.
8
Social Media Use in Patients with Inflammatory Bowel Disease.炎症性肠病患者使用社交媒体的情况。
Inflamm Bowel Dis. 2016 May;22(5):1231-8. doi: 10.1097/MIB.0000000000000713.
9
Social media and mobile applications in chronic disease prevention and management.社交媒体与移动应用在慢性病预防和管理中的应用
Front Psychol. 2015 May 7;6:567. doi: 10.3389/fpsyg.2015.00567. eCollection 2015.
10
Social media and health care professionals: benefits, risks, and best practices.社交媒体与医疗保健专业人员:益处、风险及最佳实践
P T. 2014 Jul;39(7):491-520.