Guo Ling, Reich Jason, Groshek Jacob, Farraye Francis A
*Department of Medicine, Boston Medical Center, Boston University School of Medicine; †Department of Emerging Media, Boston University School of Communications; and ‡Section of Gastroenterology, Boston Medical Center, Boston University School of Medicine, Boston, Massachusetts.
Inflamm Bowel Dis. 2016 May;22(5):1231-8. doi: 10.1097/MIB.0000000000000713.
Patients with chronic illnesses such as Inflammatory Bowel Disease (IBD) have been more keen to utilize the Internet and in particular, social media to obtain patient educational information in recent years. It is important for the gastroenterologist to be aware of these modalities and how they might affect information exchange and ultimately, disease management. This article addresses the current prevalence of social media use, advent of mobile health applications, social media usage in patients with chronic conditions, usage amongst providers, and most notably, the usage and preferences in IBD patients. Over the last decade there has been an increasing desire from patients to receive educational material about their disease through social media. We reviewed the medical literature on the quality of IBD-related information on social media. Given the disparity of information available on the Internet, we remark on the quality of this information and stress the need for further research to assess the validity of IBD information posted on social media.
近年来,患有诸如炎症性肠病(IBD)等慢性病的患者更热衷于利用互联网,尤其是社交媒体来获取患者教育信息。胃肠病学家了解这些方式以及它们如何影响信息交流并最终影响疾病管理非常重要。本文探讨了社交媒体使用的当前流行情况、移动健康应用程序的出现、慢性病患者中的社交媒体使用情况、医疗服务提供者中的使用情况,最值得注意的是,炎症性肠病患者的使用情况和偏好。在过去十年中,患者越来越希望通过社交媒体获得有关其疾病的教育材料。我们回顾了关于社交媒体上与炎症性肠病相关信息质量的医学文献。鉴于互联网上可用信息的差异,我们对这些信息的质量发表评论,并强调需要进一步研究以评估社交媒体上发布的炎症性肠病信息的有效性。