Winship Cancer Institute, Emory University, Atlanta, GE, USA.
Department of Behavioral Science and Health Education, Rollins School of Public Health, Atlanta, GE, USA.
Leuk Lymphoma. 2021 Aug;62(8):1860-1868. doi: 10.1080/10428194.2021.1892092. Epub 2021 Feb 28.
Across lymphoma subtypes, African Americans experience disparities in clinical trial enrollment and outcomes. Understanding the needs of this population can aid addressing these disparities. Semi-structured interviews were conducted with 14 self-identified Black/African-American lymphoma patients to determine their perceptions and attitudes about aspects of treatment and research. Constant-comparative methods identified themes including trust in medical staff, lack of diagnosis information, interest in research, research priorities, and potentially unaddressed emotional needs. Patients trusted their doctors and desired more diagnosis information. Participants often did not consider the emotions surrounding their diagnoses and concentrated on positive attitudes during treatment. Most participants were interested in clinical trials to help future lymphoma patients. Participants suggested a range of future research topics emphasizing lymphoma etiology. Building on trusting doctor-patient relationships, expanding clinical trials information, addressing emotional needs, and aligning research objectives with patient concerns are potential strategies for increasing clinical trial enrollment among Black lymphoma patients.
在淋巴瘤亚型中，非裔美国人在临床试验入组和结果方面存在差异。了解这一人群的需求有助于解决这些差异。对 14 名自我认定为黑人/非裔美国淋巴瘤患者进行了半结构化访谈，以确定他们对治疗和研究方面的看法和态度。通过不断比较的方法确定了一些主题，包括对医务人员的信任、缺乏诊断信息、对研究的兴趣、研究重点以及潜在的未满足的情感需求。患者信任他们的医生，并希望获得更多的诊断信息。参与者往往没有考虑到与他们的诊断相关的情绪，而是在治疗期间专注于积极的态度。大多数参与者有兴趣参加临床试验，以帮助未来的淋巴瘤患者。参与者提出了一系列未来的研究课题，强调了淋巴瘤的病因。在信任医患关系的基础上，扩大临床试验信息，解决情感需求，以及使研究目标与患者关注的问题保持一致，这些都是增加黑人淋巴瘤患者临床试验入组的潜在策略。
