Washington University School of Medicine, 660 S. Euclid, Saint Louis, MO, 63110, USA,
J Cancer Surviv. 2014 Mar;8(1):21-30. doi: 10.1007/s11764-013-0308-4. Epub 2013 Sep 13.
There has been a paucity of interventions developed for African American women to address persistent health disparities between African American and Caucasian breast cancer patients. We developed and piloted a technologically innovative, culturally targeted, cancer-communication intervention for African American breast cancer patients using African American breast cancer survivor stories.
We rated 917 clips from a video library of survivors' stories for likability, clarity and length, and emotional impact (scaled responses) and categorized each clip by theme (Coping, Support and Relationships, Healthcare Experiences, Follow-up Care, Quality of Life, and Treatment Side Effects). We selected 207 clips told by 35 survivors (32-68 years old; 4-30 years after diagnosis), fitting one of 12 story topics, for inclusion in the interactive video program loaded onto a touch-screen computer. Videos can be searched by storyteller or story topics; stories with the strongest emotional impact were displayed first in the video program.
We pilot tested the video program with ten African American breast cancer survivors (mean age, 54; range 39-68 years), who, after training, watched videos and then evaluated the stories and video-program usability. Survivor stories were found to be "interesting and informative," and usability was rated highly. Participants identified with storytellers (e.g., they "think a lot like me," "have values like mine") and agreed that the stories convinced them to receive recommended surveillance mammograms.
This novel, cancer-communication technology using survivor stories was very favorably evaluated by breast cancer survivors and is now being tested in a randomized controlled clinical trial.
Breast cancer survivors can draw support and information from a variety of sources, including from other breast cancer survivors. We developed the survivor stories video program specifically for African American survivors to help improve their quality of life and adherence to follow-up care. Breast cancer survivors' experiences with treatment and living with cancer make them especially credible messengers of cancer information. Our novel, interactive technology is being tested in a randomized controlled trial and will be more broadly disseminated to reach a wider audience.
针对非裔美国乳腺癌患者与白种人乳腺癌患者之间持续存在的健康差距，我们为非裔美国女性开发了一种干预措施，但数量很少。我们使用非裔美国乳腺癌幸存者的故事，为非裔美国乳腺癌患者开发并试点了一种具有创新性技术、针对性强的癌症传播干预措施。
我们对幸存者故事视频库中的 917 个片段进行了喜好度、清晰度和时长以及情感影响（量表反应）的评分，并按主题（应对、支持和关系、医疗保健经验、后续护理、生活质量和治疗副作用）对每个片段进行了分类。我们选择了 207 个由 35 位幸存者（年龄 32-68 岁；诊断后 4-30 年）讲述的故事，这些故事适合 12 个故事主题中的一个，收录在一个互动视频程序中，该程序加载到触摸屏计算机上。视频可以按讲述者或故事主题搜索；视频程序中首先显示情感影响最强的故事。
我们对 10 位非裔美国乳腺癌幸存者（平均年龄 54 岁；年龄 39-68 岁）进行了视频程序的试点测试，在经过培训后，他们观看了视频，然后对故事和视频程序的可用性进行了评估。幸存者的故事被认为是“有趣且信息丰富的”，并且可用性评价很高。参与者与讲述者产生共鸣（例如，他们“和我想法很像”、“和我有相同的价值观”），并同意这些故事使他们相信应该接受推荐的乳房 X 光检查。
使用幸存者故事的这种新颖的癌症传播技术受到了乳腺癌幸存者的高度评价，目前正在一项随机对照临床试验中进行测试。
乳腺癌幸存者可以从各种来源获得支持和信息，包括其他乳腺癌幸存者。我们专门为非裔美国幸存者开发了幸存者故事视频程序，以帮助提高他们的生活质量并坚持接受后续护理。乳腺癌幸存者的治疗经历和与癌症共存的经历使他们成为特别可信的癌症信息传播者。我们的新型互动技术正在一项随机对照试验中进行测试，并将更广泛地传播，以覆盖更广泛的受众。
