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远程医疗在多发性硬化症临床护理和研究中的应用。

Telehealth in Multiple Sclerosis Clinical Care and Research.

机构信息

Department of Neurology, Oregon Health & Science University, 3181 SW Sam Jackson Park Rd, L226, Portland, OR, 97239, USA.

出版信息

Curr Neurol Neurosci Rep. 2021 Feb 28;21(4):14. doi: 10.1007/s11910-021-01103-4.

Abstract

PURPOSE OF REVIEW

The COVID-19 pandemic has provided us with a unique opportunity to experiment with telehealth and evaluate its benefits and limitations. This review discusses the impact of telehealth on multiple sclerosis (MS) care and research in adults and children.

RECENT FINDINGS

Telehealth visits for MS patients have been shown to reduce missed workdays and costs for patients. Brief telephone-based counseling may be associated with better adherence to disease-modifying therapy, although results of multiple home-based tele-rehabilitation for people with MS have been equivocal. Overall, patients and providers have reported high levels of satisfactions with telehealth. Several remote disability measures and numerous other technological tools have emerged for use in remote MS research and care. Major challenges of telehealth include limitations to performing a complete neurologic exam and disparities in access to telehealth amongst vulnerable populations with limited access to virtual platforms. Following the rapid expansion of telehealth during the pandemic, it is highly likely that we will continue to embrace the benefits of this valuable tool. Future directions for improving telehealth should include more evidence-based research on the diagnostic accuracy in neuroimmunology and reducing disparities in the access to telehealth.

摘要

目的综述

COVID-19 大流行为我们提供了一个独特的机会来尝试远程医疗,并评估其益处和局限性。这篇综述讨论了远程医疗对成人和儿童多发性硬化(MS)护理和研究的影响。

最近的发现

已证明 MS 患者的远程医疗就诊可减少患者的工作日缺勤和费用。基于电话的简短咨询可能与改善疾病修正治疗的依从性有关,尽管多项针对 MS 患者的家庭远程康复的结果尚无定论。总体而言,患者和提供者对远程医疗的满意度很高。已经出现了几种用于远程 MS 研究和护理的远程残疾测量和许多其他技术工具。远程医疗的主要挑战包括进行完整的神经检查的局限性,以及在弱势群体中获得远程医疗的机会存在差异,这些人群很难获得虚拟平台。在大流行期间远程医疗迅速扩张之后,我们极有可能继续接受这种有价值工具的益处。改善远程医疗的未来方向应包括更多关于神经免疫学诊断准确性的基于证据的研究,并减少远程医疗获取方面的差异。

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