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简报:确定在军事定向搬迁后被诊断出患有 ASD 的儿童的军属看护者的关注点。

Brief Report: Identifying Concerns of Military Caregivers with Children Diagnosed with ASD Following a Military Directed Relocation.

机构信息

Applied Behavior Analysis Online Program, The Chicago School of Professional Psychology, Chicago, USA.

, 9917 W Antietam St, Boise, Idaho, 83709-3405, USA.

出版信息

J Autism Dev Disord. 2022 Jan;52(1):447-453. doi: 10.1007/s10803-021-04936-7. Epub 2021 Mar 5.

DOI:10.1007/s10803-021-04936-7
PMID:33666798
Abstract

Military families relocate three times more often than non-military families. Those whom have children diagnosed with Autism Spectrum Disorder face challenges related to inconsistencies in services, delay of services, and lack of continuity of care. The current study expands the limited research examining the experiences of military families with children with Autism by focusing on impact of relocation, specifically identifying potential causes of delays in services. An online survey of 25 military caregivers of children with autism suggests potential delays in service related to provider waitlists, obtaining new referrals, and lengthy intake processes. The impact of these inconsistencies is discussed in relation to child progress and the need for future research in this area.

摘要

军人家庭的搬迁频率比非军人家庭高三倍。那些孩子被诊断患有自闭症谱系障碍的家庭面临着与服务不一致、服务延迟以及缺乏护理连续性相关的挑战。本研究通过关注搬迁的影响,特别是确定服务延迟的潜在原因,扩展了对患有自闭症儿童的军人家庭的经验的有限研究。一项针对 25 名患有自闭症儿童的军人照顾者的在线调查表明,服务延迟与提供者候补名单、获得新推荐以及冗长的入组过程有关。这些不一致的影响与儿童的进步有关,并需要在这一领域进行未来的研究。

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J Autism Dev Disord. 2022 Jan;52(1):447-453. doi: 10.1007/s10803-021-04936-7. Epub 2021 Mar 5.
2
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本文引用的文献

1
Transition from early intervention program to primary school in children with autism spectrum disorder.自闭症谱系障碍儿童从早期干预项目过渡到小学阶段。
World J Clin Pediatr. 2017 Nov 8;6(4):169-175. doi: 10.5409/wjcp.v6.i4.169.
2
Social participation and its relation to internalizing symptoms among youth with autism spectrum disorder as they transition from high school.自闭症谱系障碍青少年从高中过渡阶段的社会参与及其与内化症状的关系。
Autism Res. 2017 Apr;10(4):663-672. doi: 10.1002/aur.1709. Epub 2016 Oct 14.
3
Understanding military families who have dependents with special health care and/or educational needs.
了解那些有家属存在特殊医疗保健和/或教育需求的军人家庭。
Disabil Health J. 2016 Jul;9(3):423-30. doi: 10.1016/j.dhjo.2016.03.002. Epub 2016 Mar 28.