Stavinoha Peter L, Solesbee Cody, Swearer Susan M, Svoboda Steven, Klesse Laura J, Holland Alice Ann
Division of Pediatrics, University of Texas MD Anderson Cancer Center, Houston, TX 77030, USA.
College of Education and Human Sciences, University of Nebraska-Lincoln, Lincoln, NE 68508, USA.
Children (Basel). 2021 Feb 15;8(2):145. doi: 10.3390/children8020145.
Neurofibromatosis type 1 (NF1) is an autosomal disorder associated with numerous physical stigmata. Children with NF1 are at known risk for attention-deficit/hyperactivity disorder (ADHD), academic struggles, and significant social difficulties and adverse social outcomes, including bullying victimization. The primary aim of this study was to identify risk factors associated with bullying victimization in children with NF1 to better inform clinicians regarding targets for prevention and clinical intervention. Children and a parent completed questionnaires assessing the bully victim status, and parents completed a measure of ADHD symptoms. Analyses were completed separately for parent-reported victimization of the child and the child's self-report of victimization. According to the parent report, results suggest ADHD symptoms are a significant risk factor for these children being a target of bullying. Findings for academic disability were not conclusive, nor were findings related to having a parent with NF1. Findings indicate the need for further research into possible risk factors for social victimization in children with NF1. Results provide preliminary evidence that may guide clinicians working with children with NF1 and their parents in identifying higher-risk profiles that may warrant earlier and more intensive intervention to mitigate later risk for bullying victimization.
1型神经纤维瘤病（NF1）是一种常染色体疾病，与众多身体特征有关。患有NF1的儿童已知有患注意力缺陷多动障碍（ADHD）、学业困难以及严重社交困难和不良社会后果（包括受欺凌）的风险。本研究的主要目的是确定与NF1儿童受欺凌相关的风险因素，以便更好地为临床医生提供预防目标和临床干预方面的信息。儿童及其家长完成了评估受欺凌状况的问卷，家长还完成了一份ADHD症状量表。分别对家长报告的儿童受欺凌情况和儿童自我报告的受欺凌情况进行了分析。根据家长报告，结果表明ADHD症状是这些儿童成为欺凌目标的一个重要风险因素。关于学业残疾的研究结果尚无定论，与父母患有NF1相关的研究结果也没有定论。研究结果表明需要进一步研究NF1儿童社会受害的可能风险因素。结果提供了初步证据，可能指导治疗NF1儿童及其家长的临床医生识别更高风险的情况，这些情况可能需要更早、更密集的干预，以降低后期受欺凌的风险。
