Division of Reproductive Health, National Center for Chronic Disease Prevention and Health Promotion, Centers for Disease Control and Prevention, Chamblee, GA, USA.
Bureau of Maternal and Child Health, Utah Department of Health, Salt Lake City, UT, USA.
Public Health Rep. 2022 Jan-Feb;137(1):87-93. doi: 10.1177/0033354921994895. Epub 2021 Mar 5.
The Utah Study of Associated Risks of Stillbirth (SOARS) collects data about stillbirths that are not included in medical records or on fetal death certificates. We describe the design, methods, and survey response rate from the first year of SOARS.
The Utah Department of Health identified all Utah women who experienced a stillbirth from June 1, 2018, through May 31, 2019, via fetal death certificates and invited them to participate in SOARS. The research team based the study protocol on the Pregnancy Risk Assessment Monitoring System surveillance of women with live births and modified it to be sensitive to women's recent experience of a stillbirth. We used fetal death certificates to examine survey response rates overall and by maternal characteristics, gestational age of the fetus, and month in which the loss occurred.
Of 288 women invited to participate in the study, 167 (58.0%) completed the survey; 149 (89.2%) responded by mail and 18 (10.8%) by telephone. A higher proportion of women who were non-Hispanic White (vs other races/ethnicities), were married (vs unmarried), and had ≥high school education (vs <high school education) responded to the survey. Differences between responders and nonresponders by maternal age, gestational age of the fetus, or month of delivery were not significant. Among responders, item nonresponse rates were low (range, 0.6%-5.4%). The question about income (4.8%) and the questions about tests offered and performed during the hospital stay had the highest item nonresponse rates.
The response rate suggests that a mail- and telephone-based survey can be successful in collecting self-reported information about risk factors for stillbirths not currently included in medical records or fetal death certificates.
犹他州出生后相关风险研究（SOARS）收集了未包含在病历或胎儿死亡证明中的死胎数据。我们描述了 SOARS 第一年的设计、方法和调查响应率。
犹他州卫生部通过胎儿死亡证明确定了 2018 年 6 月 1 日至 2019 年 5 月 31 日期间所有经历死胎的犹他州女性，并邀请她们参加 SOARS。研究小组以活产妇女妊娠风险评估监测系统监测为基础制定研究方案，并对其进行了修改，使其对女性近期死胎经历更为敏感。我们使用胎儿死亡证明检查了总体和按产妇特征、胎儿胎龄以及死亡发生月份的调查响应率。
在 288 名受邀参与研究的女性中，167 名（58.0%）完成了调查；149 名（89.2%）通过邮件回复，18 名（10.8%）通过电话回复。与其他种族/民族相比，非西班牙裔白人（vs. 其他种族/民族）、已婚（vs. 未婚）和具有≥高中学历（vs. <高中学历）的女性更有可能回复调查。产妇年龄、胎儿胎龄或分娩月份的应答者与非应答者之间没有显著差异。在应答者中，项目无应答率较低（范围为 0.6%-5.4%）。关于收入的问题（4.8%）和关于住院期间提供和进行的检查的问题具有最高的项目无应答率。
响应率表明，基于邮件和电话的调查可以成功收集目前未包含在病历或胎儿死亡证明中的死产风险因素的自我报告信息。
