评估鱼鳞病患儿睡眠问题的重要性：对身体和心理成长损害的评论。
The importance of evaluating sleep complaints in children with ichthyoses: a commentary on physical and psychological growth impairment.
机构信息
Programa de Pós-Graduação em Medicina Translacional, Universidade Federal de São Paulo, São Paulo, Brazil.
Departamento de Dermatologia, Universidade Federal de São Paulo, São Paulo, Brazil.
出版信息
J Clin Sleep Med. 2021 Jun 1;17(6):1147-1148. doi: 10.5664/jcsm.9208.
Abstract
Ichthyosis, as a debilitating disease, can cause significant physical and psychological damage to children and their families, which also includes sleep impairment. We call attention to the importance of evaluating sleep complaints in these patients, given the scarcity of studies on this subject. As the disease commonly results in severe skin injury, it can affect social relationships and the life and sleep quality of the individuals, leading to significant psychologic damage that can persist throughout their lives.
摘要
鱼鳞病是一种使人衰弱的疾病，会给儿童及其家庭带来严重的身心伤害，包括睡眠障碍。鉴于关于这个主题的研究很少，我们呼吁重视这些患者的睡眠问题。由于这种疾病通常会导致严重的皮肤损伤，它会影响人际关系以及个人的生活和睡眠质量，导致严重的心理伤害，这种伤害可能会伴随他们一生。
相似文献
1
The importance of evaluating sleep complaints in children with ichthyoses: a commentary on physical and psychological growth impairment.评估鱼鳞病患儿睡眠问题的重要性：对身体和心理成长损害的评论。
J Clin Sleep Med. 2021 Jun 1;17(6):1147-1148. doi: 10.5664/jcsm.9208.
2
Ichthyosis molecular fingerprinting shows profound T17 skewing and a unique barrier genomic signature.鱼鳞病分子指纹图谱显示出明显的 T17 偏倚和独特的屏障基因组特征。
J Allergy Clin Immunol. 2019 Feb;143(2):604-618. doi: 10.1016/j.jaci.2018.03.021. Epub 2018 May 24.
3
Ichthyoses in everyday practice: management of a rare group of diseases.寻常型鱼鳞病的日常诊疗：罕见疾病群的管理。
J Dtsch Dermatol Ges. 2020 Mar;18(3):225-243. doi: 10.1111/ddg.14049. Epub 2020 Mar 2.
4
Clinico-epidemiological Study of Congenital Ichthyosis in a Tertiary Care Center of Eastern India.印度东部一家三级医疗中心先天性鱼鳞病的临床流行病学研究
Indian J Dermatol. 2017 Nov-Dec;62(6):606-611. doi: 10.4103/ijd.IJD_411_17.
5
Spectrum of ichthyoses in an Austrian ichthyosis cohort from 2004 to 2017.2004 年至 2017 年奥地利鱼鱗病队列中的鱼鱗病谱。
J Dtsch Dermatol Ges. 2020 Jan;18(1):17-25. doi: 10.1111/ddg.13968. Epub 2019 Oct 23.
6
Inherited ichthyosis: Non-syndromic forms.遗传性鱼鳞病：非综合征型
J Dermatol. 2016 Mar;43(3):242-51. doi: 10.1111/1346-8138.13243.
7
Ichthyoses: differential diagnosis and molecular genetics.鱼鳞病：鉴别诊断与分子遗传学
Eur J Dermatol. 2006 Jul-Aug;16(4):349-59.
8
Harlequin ichthyosis and other autosomal recessive congenital ichthyoses: the underlying genetic defects and pathomechanisms.丑角样鱼鳞病及其他常染色体隐性遗传性先天性鱼鳞病：潜在的基因缺陷及发病机制
J Dermatol Sci. 2006 May;42(2):83-9. doi: 10.1016/j.jdermsci.2006.01.003. Epub 2006 Feb 14.
9
Dermatology Part 2: Ichthyoses and Psoriasis.皮肤病学第2部分：鱼鳞病和银屑病。
Handb Exp Pharmacol. 2020;261:153-175. doi: 10.1007/164_2019_345.
10
Malnutrition in children with ichthyosis: Recommendations for monitoring from a multidisciplinary clinic experience.儿童鱼鳞病患者的营养不良：多学科临床经验的监测建议。
J Am Acad Dermatol. 2021 Jul;85(1):144-151. doi: 10.1016/j.jaad.2020.06.064. Epub 2020 Jun 22.
引用本文的文献
1
Memory, mood and associated neuroanatomy in individuals with steroid sulphatase deficiency (X-linked ichthyosis).类固醇硫酸酯酶缺乏症（X 连锁鱼鳞癣）个体的记忆、情绪及相关神经解剖学。
Genes Brain Behav. 2024 Jun;23(3):e12893. doi: 10.1111/gbb.12893.
2
X-linked ichthyosis: New insights into a multi-system disorder.X连锁鱼鳞病：对一种多系统疾病的新见解。
Skin Health Dis. 2022 Oct 17;2(4):e179. doi: 10.1002/ski2.179. eCollection 2022 Dec.
本文引用的文献
1
Influence of Itch and Pain on Sleep Quality in Atopic Dermatitis and Psoriasis.特应性皮炎和银屑病患者瘙痒和疼痛对睡眠质量的影响。
Acta Derm Venereol. 2019 Feb 1;99(2):175-180. doi: 10.2340/00015555-3065.
2
Insomnia in Infants and Young Children.婴幼儿失眠
Pediatr Ann. 2017 Sep 1;46(9):e321-e326. doi: 10.3928/19382359-20170816-02.
3
Inherited ichthyosis: Non-syndromic forms.遗传性鱼鳞病：非综合征型
J Dermatol. 2016 Mar;43(3):242-51. doi: 10.1111/1346-8138.13243.
4
Quality of life in Swedish children with congenital ichthyosis.瑞典先天性鱼鳞病患儿的生活质量。
Dermatol Reports. 2010 May 18;2(1):e7. doi: 10.4081/dr.2010.e7. eCollection 2010 Jan 18.
5
IQoL-32: a new ichthyosis-specific measure of quality of life.IQoL-32：一种新的专用于评估鱼鳞癣患者生活质量的指标。
J Am Acad Dermatol. 2013 Jul;69(1):82-7. doi: 10.1016/j.jaad.2013.01.022. Epub 2013 Mar 7.
6
Sleep-wake disorders and dermatology.睡眠-觉醒障碍与皮肤病学。
Clin Dermatol. 2013 Jan-Feb;31(1):118-26. doi: 10.1016/j.clindermatol.2011.11.016.
7
Resource utilization and quality of life associated with congenital ichthyoses.先天性鱼鳞病相关的资源利用和生活质量
Pediatr Dermatol. 2011 Sep-Oct;28(5):512-8. doi: 10.1111/j.1525-1470.2011.01432.x. Epub 2011 Sep 5.
8
Revised nomenclature and classification of inherited ichthyoses: results of the First Ichthyosis Consensus Conference in Sorèze 2009.遗传性鱼鳞病的修订命名和分类：2009 年索雷兹第一次鱼鳞病共识会议的结果。
J Am Acad Dermatol. 2010 Oct;63(4):607-41. doi: 10.1016/j.jaad.2009.11.020.
9
Quality of life in adults with congenital ichthyosis.
J Adv Nurs. 2003 Nov;44(4):412-9. doi: 10.1046/j.0309-2402.2003.02820.x.
10
Ichthyosis: etiology, diagnosis, and management.鱼鳞病：病因、诊断与治疗
Am J Clin Dermatol. 2003;4(2):81-95. doi: 10.2165/00128071-200304020-00002.
Zotero 插件