Faculty of Nursing, University of Alberta, Edmonton, AB, Canada.
School of Nursing, Division of Teaching and Learning Support and Innovation, University of Victoria, Victoria, BC, Canada.
Int J Qual Stud Health Well-being. 2021 Dec;16(1):1893146. doi: 10.1080/17482631.2021.1893146.
: To explore how people with end stage chronic obstructive pulmonary disease and their family members describe living in the face of impending death.: A narrative inquiry was undertaken using a social constructionist perspective. Data were collected in 2017-18 in two in-depth interviews, lasting 90 to 120 minutes approximately 3-4 months apart, with a telephone follow-up 2-3 months later. Thematic analysis was conducted including analysis within and across participants.: Sixteen people with advanced chronic obstructive pulmonary disease and seven family members participated. For both people with the disease and family members, six key themes/storylines emerged including missing life, being vigilant, hope and realism, avoiding death talk, the scary dying process, and need to prepare.: This study highlighted six key storylines about death and dying with advanced chronic obstructive pulmonary disease for people with the illness and their family members. The participants with the illness and their family members held similar perceptions about end of life. More supports are needed for people with advanced chronic obstructive pulmonary disease and their family members in living with their illness while ensuring that they experience a "good death."
探索终末期慢性阻塞性肺疾病患者及其家属在面对死亡时的生活描述。:采用社会建构主义视角进行叙述性探究。数据收集于 2017-18 年,采用 2 次深度访谈,每次持续约 90-120 分钟,间隔约 3-4 个月,并在 2-3 个月后进行电话随访。进行主题分析,包括参与者内部和之间的分析。:16 名晚期慢性阻塞性肺疾病患者和 7 名家属参与。对于患者和家属来说,出现了六个关键主题/故事情节,包括错过生命、保持警惕、希望与现实、避免谈论死亡、可怕的死亡过程以及需要准备。:本研究强调了晚期慢性阻塞性肺疾病患者及其家属关于死亡和临终的六个关键故事情节。患有疾病的患者及其家属对生命末期有相似的看法。需要为晚期慢性阻塞性肺疾病患者及其家属提供更多支持,让他们在患病的同时生活,并确保他们经历“善终”。