College of Education, Jinggangshan University, Ji'an, China.
Affiliated Hospital, Jinggangshan University, Ji'an, China.
Psychooncology. 2021 Jun;30(6):892-900. doi: 10.1002/pon.5667. Epub 2021 Mar 9.
The vital role played by primary caregivers in caring for cancer patients is well-recognized, but the caregiver burden and impact on family functioning to caregivers' mental health is poorly understood. This study examined the prospective and reciprocal relationships between family functioning, caregiver burden, and mental health. We aimed to determine whether inferior family functioning and heavy caregiver burden act as risk factors for mental health, as consequences of mental health, or both.
Participants were 187 primary caregivers of cancer patients. They completed questionnaires with standardized measures assessing family functioning, caregiver burden, and mental health. A quantitative longitudinal design and a cross-lag model were used to test the reciprocal relationships between variables at three time points with 6-month intervals during the first year of early-stage cancer diagnosis and treatment.
Family functioning did not predict participants' future mental health, but their mental health state predicted future caregiver burden and family functioning. Caregiver burden also predicted participants' future mental health. There was a dynamic reciprocal relationship between caregiver burden and mental health over time.
The findings of this study emphasize the adverse effects of caregiver burden and may contribute to shedding light on the distinct mechanisms that underlie the relationships between caregiver burden, family functioning, and mental health. Our findings indicate the necessity of developing interventions to reduce the burden of caregiving and to facilitate family functioning. They will provide direction for family-centered nursing to meet primary caregivers' mental health needs in the care of cancer patients.
主要照顾者在照顾癌症患者方面发挥着至关重要的作用,这一点已得到广泛认可,但照顾者负担以及其对家庭功能的影响对照顾者心理健康的影响却知之甚少。本研究考察了家庭功能、照顾者负担和心理健康之间的前瞻性和相互关系。我们旨在确定较差的家庭功能和沉重的照顾者负担是否是心理健康的风险因素,是心理健康的后果,还是两者兼而有之。
参与者为 187 名癌症患者的主要照顾者。他们完成了带有标准化措施的问卷,这些措施评估了家庭功能、照顾者负担和心理健康。采用定量纵向设计和交叉滞后模型,在癌症早期诊断和治疗的第一年中,每 6 个月进行 3 次测试,以测试变量之间的相互关系。
家庭功能并不能预测参与者未来的心理健康,但他们的心理健康状况预测了未来的照顾者负担和家庭功能。照顾者负担也预测了参与者未来的心理健康。在时间上,照顾者负担和心理健康之间存在动态的相互关系。
本研究的结果强调了照顾者负担的不利影响,并可能有助于阐明照顾者负担、家庭功能和心理健康之间关系的不同机制。我们的研究结果表明,有必要制定干预措施来减轻照顾负担,促进家庭功能。这将为以家庭为中心的护理提供指导,以满足癌症患者照顾者的心理健康需求。