School of Nursing, University of North Carolina, North Carolina, USA.
Ramathibodi School of Nursing, Faculty of Medicine Ramathibodi Hospital, Mahidol University, Bangkok, Thailand.
J Am Med Inform Assoc. 2021 Jul 14;28(7):1518-1525. doi: 10.1093/jamia/ocab037.
This study examined the perspectives on the use of data visualizations and identified key features seriously ill children, their parents, and clinicians prefer to see when visualizing symptom data obtained from mobile health technologies (an Apple Watch and smartphone symptom app).
Children with serious illness and their parents were enrolled into a symptom monitoring study then a subset was interviewed for this study. A study team member created symptom data visualizations using the pediatric participant's mobile technology data. Semi-structured interviews were conducted with a convenience sample of participants (n = 14 children; n = 14 parents). In addition, a convenience sample of clinicians (n = 30) completed surveys. Pediatric and parent participants shared their preferences and perspectives on the symptom visualizations.
We identified 3 themes from the pediatric and parent participant interviews: increased symptom awareness, communication, and interpretability of the symptom visualizations. Clinicians preferred pie charts and simple bar charts for their ease of interpretation and ability to be used as communication tools. Most clinicians would prefer to see symptom visualizations in the electronic health record.
Mobile health tools offer a unique opportunity to obtain patient-generated health data. Effective, concise symptom visualizations can be used to synthesize key clinical information to inform clinical decisions and promote patient-clinician communication to enhance symptom management.
Effectively visualizing complex mobile health data can enhance understanding of symptom dynamics and promote patient-clinician communication, leading to tailored personalized symptom management strategies.
本研究探讨了数据可视化的应用观点，并确定了严重疾病患儿、其父母和临床医生在可视化从移动健康技术（Apple Watch 和智能手机症状应用程序）获得的症状数据时希望看到的关键特征。
患有严重疾病的儿童及其父母被纳入症状监测研究，然后对其中一部分进行了访谈。研究团队成员使用儿科参与者的移动技术数据创建了症状数据可视化。对参与者的方便样本（n=14 名儿童；n=14 名父母）进行了半结构化访谈。此外，对方便的临床医生样本（n=30）进行了调查。儿科和家长参与者分享了他们对症状可视化的偏好和观点。
我们从儿科和家长参与者的访谈中确定了 3 个主题：增加对症状的认识、沟通和症状可视化的可解释性。临床医生更喜欢饼图和简单的条形图，因为它们易于解释且可作为沟通工具。大多数临床医生希望在电子健康记录中看到症状可视化。
移动健康工具为获取患者生成的健康数据提供了独特的机会。有效的、简洁的症状可视化可以用于综合关键临床信息，为临床决策提供信息，并促进患者-临床医生的沟通，以加强症状管理。
有效地可视化复杂的移动健康数据可以增强对症状动态的理解，并促进患者-临床医生的沟通，从而制定出针对患者的个性化症状管理策略。
