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中国媒体对人类基因专利的伦理关切与态度剖析

Framing Ethical Concerns and Attitudes towards Human Gene Patents in the Chinese Press.

作者信息

Du Li, Lin Sijie, Kamenova Kalina

机构信息

Faculty of Law, University of Macau, Taipa, Macau SAR.

C&C Lawyers & Notaries, Macau, Macau SAR.

出版信息

Asian Bioeth Rev. 2020 Aug 1;12(3):307-323. doi: 10.1007/s41649-020-00136-0. eCollection 2020 Sep.

Abstract

This study examines the representations of human gene patents in Chinese newspapers. We conducted a qualitative content analysis of news articles published between 2006 and 2017 to identify the major themes in media coverage, ethical considerations, perceptions of risks and benefits, and attitudes towards the patentability of human genes. The results show that two key ethical concerns were expressed by journalists: (1) that it is morally wrong to own or patent human genes and (2) that gene patents could potentially impede patients' access to healthcare services. Nonetheless, the press coverage has tended to be largely favorable (57.8%), rather than opposed (17.8%) to human gene patenting. There were no normative claims that human genes should not be patentable in China, which indicates a generally positive attitude towards patentability in media discourse. Most articles that expressed criticism toward gene patenting discussed challenges in other countries, with significant attention given to the United States Supreme Court's ruling in the case that invalidated Myriad Genetics' patents on the and genes. Overall, the newspapers were uncritical of the Chinese gene patenting regime. News reporting on the issue was highly suggestive of a strong pro-commercialization stance, although some discussions emphasized potential risks over benefits. Our analysis highlights the need for balanced media reporting on human gene patents in China and a top-down approach to engage the public in substantive discussions on the ethical and societal implications of the existing patent regime.

摘要

本研究考察了中国报纸对人类基因专利的报道情况。我们对2006年至2017年间发表的新闻文章进行了定性内容分析,以确定媒体报道中的主要主题、伦理考量、对风险和益处的认知,以及对人类基因可专利性的态度。结果表明,记者表达了两个关键的伦理关切:(1)拥有人类基因或为其申请专利在道德上是错误的;(2)基因专利可能会阻碍患者获得医疗服务。尽管如此,媒体报道总体上倾向于支持(57.8%)而非反对(17.8%)人类基因专利。在中国,没有规范性的主张认为人类基因不应具有可专利性,这表明媒体话语中对可专利性总体持积极态度。大多数对基因专利提出批评的文章讨论的是其他国家的挑战,其中特别关注了美国最高法院在使Myriad Genetics公司对BRCA1和BRCA2基因的专利无效的案件中的裁决。总体而言,报纸对中国的基因专利制度并无批评。关于这个问题的新闻报道强烈暗示了一种强烈的支持商业化的立场,尽管一些讨论强调了潜在风险大于益处。我们的分析强调了在中国对人类基因专利进行平衡的媒体报道的必要性,以及采取自上而下的方法让公众参与对现有专利制度的伦理和社会影响进行实质性讨论的必要性。

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