Department of Social Work, Chinese University of Hong Kong, Hong Kong, Hong Kong.
School of Journalism and Communication, The Chinese University of Hong Kong, Hong Kong, Hong Kong.
J Med Internet Res. 2022 Sep 2;24(9):e39805. doi: 10.2196/39805.
Dementia is a global public health priority due to rapid growth of the aging population. As China has the world's largest population with dementia, this debilitating disease has created tremendous challenges for older adults, family caregivers, and health care systems on the mainland nationwide. However, public awareness and knowledge of the disease remain limited in Chinese society.
This study examines online public discourse and sentiment toward dementia among the Chinese public on a leading Chinese social media platform Weibo. Specifically, this study aims to (1) assess and examine public discourse and sentiment toward dementia among the Chinese public, (2) determine the extent to which dementia-related discourse and sentiment vary among different user groups (ie, government, journalists/news media, scientists/experts, and the general public), and (3) characterize temporal trends in public discourse and sentiment toward dementia among different user groups in China over the past decade.
In total, 983,039 original dementia-related posts published by 347,599 unique users between 2010 and 2021, together with their user information, were analyzed. Machine learning analytical techniques, including topic modeling, sentiment analysis, and semantic network analyses, were used to identify salient themes/topics and their variations across different user groups (ie, government, journalists/news media, scientists/experts, and the general public).
Topic modeling results revealed that symptoms, prevention, and social support are the most prevalent dementia-related themes on Weibo. Posts about dementia policy/advocacy have been increasing in volume since 2018. Raising awareness is the least discussed topic over time. Sentiment analysis indicated that Weibo users generally attach negative attitudes/emotions to dementia, with the general public holding a more negative attitude than other user groups.
Overall, dementia has received greater public attention on social media since 2018. In particular, discussions related to dementia advocacy and policy are gaining momentum in China. However, disparaging language is still used to describe dementia in China; therefore, a nationwide initiative is needed to alter the public discourse on dementia. The results contribute to previous research by providing a macrolevel understanding of the Chinese public's discourse and attitudes toward dementia, which is essential for building national education and policy initiatives to create a dementia-friendly society. Our findings indicate that dementia is associated with negative sentiments, and symptoms and prevention dominate public discourse. The development of strategies to address unfavorable perceptions of dementia requires policy and public health attention. The results further reveal that an urgent need exists to increase public knowledge about dementia. Social media platforms potentially could be leveraged for future dementia education interventions to increase dementia awareness and promote positive attitudes.
由于人口老龄化的快速增长,痴呆症成为全球公共卫生的重点关注领域。由于中国是全球痴呆症患者最多的国家,这种使人衰弱的疾病给全国老年人、家庭照顾者和医疗保健系统带来了巨大挑战。然而,中国社会对这种疾病的公众意识和知识仍然有限。
本研究考察了中国最大的社交媒体平台微博上中国公众对痴呆症的在线公众话语和情绪。具体来说,本研究旨在:(1)评估和考察中国公众对痴呆症的公众话语和情绪;(2)确定痴呆症相关话语和情绪在不同用户群体(即政府、记者/新闻媒体、科学家/专家和普通公众)之间的差异程度;(3)描述过去十年中国不同用户群体对痴呆症的公众话语和情绪的时间趋势。
共分析了 2010 年至 2021 年间 347599 名用户发布的 983039 条原始痴呆症相关帖子及其用户信息。使用机器学习分析技术,包括主题建模、情感分析和语义网络分析,来识别不同用户群体(即政府、记者/新闻媒体、科学家/专家和普通公众)的显著主题/话题及其变化。
主题建模结果显示,微博上最常见的痴呆症相关主题是症状、预防和社会支持。自 2018 年以来,有关痴呆症政策/倡导的帖子数量不断增加。随着时间的推移,提高认识的话题讨论最少。情感分析表明,微博用户普遍对痴呆症持负面态度/情绪,普通公众的态度比其他用户群体更为负面。
总的来说,自 2018 年以来,社交媒体上对痴呆症的关注度有所提高。特别是,中国有关痴呆症倡导和政策的讨论正在升温。然而,在中国,仍然使用贬低的语言来描述痴呆症;因此,需要在全国范围内发起一项倡议来改变公众对痴呆症的话语。研究结果为之前的研究提供了一个宏观层面的理解,即中国公众对痴呆症的话语和态度,这对于制定国家教育和政策举措以建立一个痴呆症友好型社会至关重要。我们的发现表明,痴呆症与负面情绪有关,症状和预防是公众话语的主要内容。制定策略来解决对痴呆症的不利看法需要政策和公共卫生的关注。研究结果进一步表明,迫切需要提高公众对痴呆症的认识。社交媒体平台可能可以被用于未来的痴呆症教育干预,以提高痴呆症意识,促进积极的态度。