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探索低收入非裔美国人和拉丁裔照顾者对其子女哮喘控制的看法,以及他们对信息材料的反应。

Exploring low-income African American and Latinx caregiver perspectives on asthma control in their children and reactions to messaging materials.

机构信息

Dell Medical School, The University of Texas, Austin, TX, USA.

Department of Educational Psychology, The University of Texas, Austin, TX, USA.

出版信息

J Asthma. 2022 Jun;59(6):1269-1275. doi: 10.1080/02770903.2021.1903918. Epub 2021 Mar 25.

DOI:10.1080/02770903.2021.1903918
PMID:33722170
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8463621/
Abstract

BACKGROUND

African-American and Latinx children suffer from higher rates of uncontrolled asthma and poorer outcomes compared to white children. Sociocultural factors play a prominent role in how caregivers navigate asthma control for their children.

OBJECTIVES

(1) Explore the knowledge, perceptions and behaviors of Latinx and African-American caregivers related to their children's asthma and identify barriers to achieving asthma control; and (2) Elicit caregiver responses to messaging materials intended to help them better recognize uncontrolled asthma and seek timely medical treatment.

METHODS

Study participants were recruited and screened to meet the following inclusion criteria: African-American or Latinx race/ethnicity, household income at or below 185% of the federal poverty line, and at least one child diagnosed with asthma with symptom frequency consistent with uncontrolled asthma according to national guidelines. Participants attended one of three moderator-led focus groups. The transcripts were qualitatively analyzed using a thematic analysis approach.

RESULTS

Themes emerged among the nineteen participants related to asthma assessment, management, emotion, support, and trust. Caregivers exhibited gaps in their asthma knowledge, especially pertaining to the term "asthma control." Caregivers generally worried about asthma emergencies more than the daily impairments caused by uncontrolled asthma. Many were uncomfortable using daily controller medications, citing issues of provider trust and side effect concerns. Caregivers did not recognize uncontrolled asthma in their own child, even after viewing messaging materials informing them of symptom frequency criteria.

CONCLUSION

Culturally tailored interventions, including public asthma messaging, should address low trust in provider recommendations and caregiver concerns about controller medications.

摘要

背景

非裔美国人和拉丁裔儿童的哮喘发病率较高且控制效果较差,与白人儿童相比,其预后更差。社会文化因素在照顾者为子女管理哮喘方面发挥着重要作用。

目的

(1)探讨拉丁裔和非裔美国裔照顾者在子女哮喘方面的知识、认知和行为,并确定实现哮喘控制的障碍;(2)了解照顾者对旨在帮助他们更好地识别未控制哮喘并及时寻求医疗治疗的信息材料的反应。

方法

招募并筛选研究参与者,以满足以下纳入标准:非裔美国人或拉丁裔种族/民族,家庭收入达到或低于联邦贫困线的 185%,并且至少有一名根据国家指南诊断患有哮喘且症状频率与未控制哮喘一致的儿童。参与者参加了三个由主持人主导的焦点小组之一。使用主题分析方法对转录本进行定性分析。

结果

19 名参与者中有主题出现,涉及哮喘评估、管理、情绪、支持和信任。照顾者在哮喘知识方面存在差距,特别是在“哮喘控制”这一术语方面。照顾者通常更担心哮喘紧急情况,而不是未控制哮喘引起的日常障碍。许多人对使用日常控制器药物感到不舒服,他们提到了对提供者信任和副作用的担忧。即使在观看了告知他们症状频率标准的信息材料后,照顾者也没有认识到自己孩子的哮喘未得到控制。

结论

应针对文化差异,制定干预措施,包括公共哮喘宣传,以解决提供者建议信任度低和照顾者对控制器药物的担忧。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1d90/8463621/289ad70db576/nihms-1710224-f0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1d90/8463621/289ad70db576/nihms-1710224-f0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1d90/8463621/289ad70db576/nihms-1710224-f0001.jpg

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