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青少年和青年癌症患者对社交媒体的看法。

Perspectives on Social Media from Adolescents and Young Adults with Cancer.

机构信息

5417Child Life Program, St. Jude Children's Research Hospital, Memphis, TN, USA.

School of Educational Foundations, Leadership and Aviation, 33086Oklahoma State University, Stillwater, OK, USA.

出版信息

J Pediatr Oncol Nurs. 2021 Jul-Aug;38(4):225-232. doi: 10.1177/1043454221992319. Epub 2021 Mar 17.

DOI:10.1177/1043454221992319
PMID:33729902
Abstract

Adolescents and young adults (AYAs) with cancer use social media in unique ways throughout treatment. The purpose of this article is to describe the social media experiences of AYAs with cancer as a means of exploring the potential impact of social media on AYA psychosocial development after diagnosis and throughout cancer treatment. Seven AYAs treated for cancer, aged 15-20 years, completed a semi-structured interview regarding their social media preferences and habits. Each interview was transcribed verbatim and de-identified. Data were coded and themes were identified via latent thematic analysis. Four themes emerged regarding social media experiences for AYAs with cancer: (1) changes in audience and feedback after diagnosis; (2) attitudes about body image and peer support; (3) control over personal, familial, and societal messages about illness; and (4) maintaining normalcy despite hospital stressors. Social media appear especially useful for promoting social and identity development as AYAs undergo cancer treatment. Specifically, social media provide spaces to negotiate body image and sense of self, to manage peer relationships, to reclaim control and independence, and to maintain normalcy. Understanding these experiences will prepare healthcare providers and caregivers to assess ongoing psychosocial development and adjustment throughout cancer treatment.

摘要

青少年和年轻成年人(AYAs)在癌症治疗过程中以独特的方式使用社交媒体。本文的目的是描述 AYA 癌症患者的社交媒体体验,以探讨社交媒体在诊断后和癌症治疗过程中对 AYA 心理社会发展的潜在影响。 7 名年龄在 15-20 岁之间的癌症患者接受了关于他们的社交媒体偏好和习惯的半结构化访谈。每次访谈都逐字记录并进行去识别处理。数据经过编码,并通过潜在主题分析确定主题。 关于 AYA 癌症患者的社交媒体体验,出现了四个主题:(1)诊断后观众和反馈的变化;(2)对身体形象和同伴支持的态度;(3)对个人、家庭和社会有关疾病信息的控制;以及(4)尽管有医院压力仍保持正常。 社交媒体在 AYA 接受癌症治疗时特别有助于促进社交和身份发展。具体来说,社交媒体提供了协商身体形象和自我意识、管理同伴关系、重新获得控制和独立以及保持正常的空间。了解这些体验将使医疗保健提供者和护理人员能够评估癌症治疗过程中的持续心理社会发展和调整。

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