Division of Palliative Medicine, The Ohio State University Wexner Medical Center, Columbus, Ohio, USA.
Division of Gastroenterology and Hepatology, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, USA.
J Palliat Med. 2021 Jun;24(6):924-931. doi: 10.1089/jpm.2021.0097. Epub 2021 Mar 16.
End-stage liver disease (ESLD) is an increasingly prevalent condition with high morbidity and mortality, especially for those ineligible for liver transplantation. Patients with ESLD, along with their family caregivers, have significant needs related to their quality of life, and there is increasing attention being paid to integration of palliative care (PC) principles into routine care throughout the disease spectrum. To provide upstream care for these patients and their family caregivers, it is essential for PC providers to understand their complex psychosocial and physical needs and to be aware of the unique challenges around medical decision making and end-of-life care for this patient population. This article, written by a team of liver and PC experts, shares 10 high-yield tips to help PC clinicians provide better care for patients with advanced liver disease.
终末期肝病（ESLD）是一种发病率和死亡率都很高的日益普遍的疾病，特别是对于那些不符合肝移植条件的患者。患有 ESLD 的患者及其家庭照顾者在生活质量方面有很大的需求，越来越多的人关注将姑息治疗（PC）原则整合到整个疾病谱的常规护理中。为了为这些患者及其家庭照顾者提供上游护理，PC 提供者必须了解他们复杂的心理社会和身体需求，并意识到在为这一患者群体做出医疗决策和临终关怀方面所面临的独特挑战。本文由肝脏和 PC 专家团队撰写，分享了 10 条高收益的提示，以帮助 PC 临床医生为晚期肝病患者提供更好的护理。
