Department of Cardiothoracic Surgery, Centre for Cardiac, Vascular, Pulmonary and Infectious Diseases, Rigshospitalet, Copenhagen University Hospital, Copenhagen, Denmark.
2Centre for Cardiac, Vascular, Pulmonary and Infectious Diseases, Rigshospitalet, Copenhagen University Hospital, Copenhagen, Denmark.
Scand J Caring Sci. 2022 Mar;36(1):183-191. doi: 10.1111/scs.12975. Epub 2021 Mar 18.
Research on COVID-19 has reported data on epidemiology and pathophysiology but less about what it means to be a person living through this illness. Research involving the patients' perspectives may help to improve healthcare professionals' understanding of ways to support patients.
To gain in-depth understanding of the meaning of a COVID-19 illness trajectory from the patients' perspective.
Fifteen participants who had undergone an illness trajectory due to confirmed COVID-19 infection participated in individual qualitative interviews. Data collection, analysis and interpretation were inspired by Ricoeur's philosophy and Merleau-Ponty's phenomenology of perception and embodiment has been applied as a theoretical frame.
Being infected with coronavirus is expressed as an experience in which the participants oscillate between relief, security, imprisonment and raw fear. A predominant focus on the physical dimensions of the diseased body was found in the encounters between patient and healthcare system, and distance may furthermore be a consequence of use of protective equipment. Stigma and fear of infection were also expressed. After COVID-19, an overwhelming feeling of a door opening to freedom is perceived. However, the body is marked, and bears witness to decay from this insidious and frightening virus. The responsibility for assessing their bodily symptoms is placed with the individual patients themselves, who feel lonely and fearful and this keeps them indoors.
During a COVID-19 illness, trajectory concerns about the unknown course of this disease are highlighted. Isolation is confrontational; however, a companionship between patients might emerge. The study shed light on an unavoidable gap between the patients and healthcare professionals due to the use protective equipment. After COVID-19, the body is labelled as something others fear and become a symbol of awe and alienation for others.
关于 COVID-19 的研究报告了流行病学和病理生理学方面的数据，但对患者在经历这种疾病时的感受却报道较少。研究患者的观点可能有助于提高医疗保健专业人员对支持患者的方式的理解。
从患者的角度深入了解 COVID-19 疾病轨迹的含义。
15 名经历过确诊 COVID-19 感染的疾病轨迹的参与者参加了单独的定性访谈。数据收集、分析和解释受到了 Ricoeur 哲学和 Merleau-Ponty 知觉和身体现象学的启发，并将其作为理论框架应用。
感染冠状病毒被表达为一种体验，参与者在解脱、安全、监禁和原始恐惧之间摇摆不定。在患者与医疗保健系统之间的接触中，主要关注患病身体的物理维度，并且距离可能是由于使用防护设备的结果。还表达了污名化和对感染的恐惧。感染 COVID-19 后，会感到一扇通向自由的大门打开了。然而，身体被标记，并见证了这种阴险而可怕的病毒带来的衰退。评估身体症状的责任在于患者自己，他们感到孤独和恐惧，这使他们待在室内。
在 COVID-19 疾病期间，轨迹突出了对这种疾病未知过程的担忧。隔离具有对抗性；然而，患者之间可能会建立一种陪伴关系。该研究揭示了由于使用防护设备而导致患者和医疗保健专业人员之间不可避免的差距。感染 COVID-19 后，身体被标记为他人恐惧的东西，并成为他人敬畏和疏远的象征。
