Hodkinson B, Gina P, Schneider M
Rheumatology Division, Department of Medicine, Groote Schuur Hospital, University of Cape Town, South Africa.
Division of Pulmonology, Department of Medicine, Groote Schuur Hospital, University of Cape Town, South Africa.
Afr J Thorac Crit Care Med. 2021 Dec 31;27(4). doi: 10.7196/AJTCCM.2021.v27i4.184. eCollection 2021.
Few studies have explored the illness perceptions, experiences or attitudes towards the future of survivors of critical coronavirus disease 2019 (COVID-19). Through in-depth qualitative interviews, we aimed to enrich our understanding of participants' perspectives, with the hope of offering more holistic and appropriate care to future patients.
Participants who had survived critical COVID-19 illness (defined as a laboratory or clinical diagnosis of COVID-19, with hypoxia requiring high-flow nasal oxygen (HFNO) or mechanical ventilation) were invited to participate. After informed consent procedures, clinic-demographic details were documented and individual interviews conducted using a topic guide, and were audio-recorded, translated, transcribed and coded into NVivo software where themes were extracted.
Of 21 participants (13 female, 8 male), the mean age was 51.8 years (range 34 - 68), and mean duration of COVID symptoms was 21.7 days (range 17 - 37). Eighteen participants had been on HFNO, and 5 required mechanical ventilation. The major themes were: distressing experience; faith-based beliefs sustaining them; gratitude to healthcare workers (HCWs); better understanding of COVID and how dangerous it is; optimism for the future; and a resolve to implement lifestyle changes.
Qualitative interviews revealed our participants' experience of severe COVID-19 as a difficult and terrifying ordeal, mitigated by faith-based beliefs, and the presence and care of HCWs. These experiences were reported by the participants as life changing, and all were inspired to focus on future self-care, and invest in fulfilling relationships. These insights call for future interventions to improve patient-centred care, including follow-up debriefing sessions, and support for lifestyle changes.
很少有研究探讨2019冠状病毒病(COVID-19)重症幸存者对疾病的认知、经历或对未来的态度。通过深入的定性访谈,我们旨在加深对参与者观点的理解,希望为未来的患者提供更全面、恰当的护理。
邀请曾患COVID-19重症(定义为实验室确诊或临床诊断为COVID-19,伴有需要高流量鼻导管吸氧(HFNO)或机械通气的低氧血症)的参与者。在获得知情同意后,记录临床人口统计学细节,并使用主题指南进行个人访谈,访谈进行录音、翻译、转录,并编码到NVivo软件中以提取主题。
21名参与者(13名女性,8名男性),平均年龄51.8岁(范围34 - 68岁),COVID症状平均持续时间为21.7天(范围17 - 37天)。18名参与者接受过高流量鼻导管吸氧,5名需要机械通气。主要主题包括:痛苦的经历;基于信仰的信念支撑着他们;对医护人员的感激之情;对COVID有了更好的理解以及认识到其危险性;对未来持乐观态度;以及决心改变生活方式。
定性访谈表明,我们的参与者将严重的COVID-19经历视为艰难且可怕的折磨,但基于信仰的信念以及医护人员的陪伴和护理减轻了这种折磨。参与者称这些经历改变了他们的生活,所有人都受到启发,要关注未来的自我护理,并投入到充实的人际关系中。这些见解呼吁未来进行干预,以改善以患者为中心的护理,包括后续的汇报会以及对生活方式改变的支持。