Department of Ophthalmology, Oregon Health & Science University Casey Eye Institute, Resident, Portland, OR, USA.
Department of Biostatistics and Bioinformatics, Associate Faculty, Emory University, Atlanta, GA, USA.
Ocul Immunol Inflamm. 2022 Jul;30(5):1060-1067. doi: 10.1080/09273948.2020.1861304. Epub 2021 Mar 19.
To evaluate health literacy, medication adherence, and quality of life (QOL) in uveitis patients.
Cross-sectional quality improvement study using questionnaires of health literacy (Short Assessment of Health Literacy), adherence (Beliefs about Medicine Questionnaire), and QOL (12-item Short Form Health Survey).
Sixty patients were surveyed: 57% women, 80% identified as Black, and 42% with schooling beyond high school. Forty-three percent of the patients had poor health literacy, with lower scores among those with less schooling ( < .01). Necessity scores were higher for multiple providers ( = .02). Necessity ( = .03) and Concerns ( < .01) scores were higher for patients seeing a rheumatologist. Patients had lower physical ( < .01) and mental QOL ( < .01) than the general US population.
Uveitis patients reported many barriers to care. Despite strong perceptions of treatment necessity, there were significant concerns, especially among patients seeing a rheumatologist. We recommend multidisciplinary care, individualized education, and counseling regarding medication safety and the necessity to improve adherence.
评估葡萄膜炎患者的健康素养、药物依从性和生活质量（QOL）。
使用健康素养（简短健康评估）、依从性（药物信念问卷）和 QOL（12 项简短健康调查）问卷进行横断面质量改进研究。
共调查了 60 名患者：57%为女性，80%为黑人，42%受过高中以上教育。43%的患者健康素养较差，受教育程度较低的患者得分较低（<0.01）。多名提供者的必要性评分较高（=0.02）。需要（=0.03）和担忧（<0.01）评分在看风湿病学家的患者中更高。患者的身体（<0.01）和精神 QOL（<0.01）均低于美国一般人群。
葡萄膜炎患者报告了许多护理障碍。尽管对治疗必要性有强烈的认识，但仍存在重大担忧，尤其是在看风湿病学家的患者中。我们建议提供多学科护理、个性化教育，并就药物安全性和提高依从性的必要性进行咨询。
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