UCL Great Ormond Street Institute of Child Health, University College London, 30 Guilford Street, London, UK.
Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.
J Clin Psychol Med Settings. 2021 Sep;28(3):477-490. doi: 10.1007/s10880-021-09768-2. Epub 2021 Mar 19.
Behavioural difficulties impact greatly upon quality of life for children with chronic illness and their families but are often not identified or adequately treated, possibly due to the separation of physical and mental health services. This case study describes the content and outcomes of guided self-help teletherapy for behavioural difficulties in a child with epilepsy and complex needs using an evidence-based behavioural parenting protocol delivered within a paediatric hospital setting. Behavioural difficulties and progress towards the family's self-identified goals were monitored at each session. Validated measures of mental health and quality of life in children were completed before and after intervention and satisfaction was measured at the end of treatment. Measures demonstrated clear progress towards the family's goals and reduction in weekly ratings of behavioural difficulties. This case demonstrates that a guided self-help teletherapy approach delivered from within the paediatric setting may be one way of meeting unmet need.
行为困难极大地影响了慢性病儿童及其家庭的生活质量，但这些问题往往未被发现或得到充分治疗，其原因可能是身心保健服务相分离。本案例研究描述了在儿科医院环境中使用循证行为养育协议，为一名患有癫痫症和复杂需求的儿童提供的行为困难引导自助式远程治疗的内容和结果。在每次治疗中，都会监测行为困难和朝着家庭确定的目标取得的进展。在干预前后完成了儿童心理健康和生活质量的有效衡量标准，并在治疗结束时衡量了满意度。衡量标准表明朝着家庭目标取得了明显进展，每周行为困难评级也有所降低。本案例表明，在儿科环境中提供的引导自助式远程治疗方法可能是满足未满足需求的一种方式。
