Chen Wei-Ti, Barbour Russell
School of Nursing, University of California, Los Angeles, Los Angeles, CA, United States.
Center for Interdisciplinary Research on AIDS (CIRA), Yale School of Public Health, New Haven, CT, United States.
Front Psychol. 2023 May 12;14:1114731. doi: 10.3389/fpsyg.2023.1114731. eCollection 2023.
Asians are "a forgotten population" whose HIV prevention and treatment needs have long been ignored. Studies on people living with HIV/AIDS (PLWHA) have primarily reported on physical and psychological conditions among men and gender minorities.
We used data-mining to select words and word patterns from pooled in-depth interviews conducted with 33 women and 12 men ( = 45) who were HIV positive and residing in San Francisco, United States, Shanghai, Beijing, or Taipei, China. We analyzed gender-based data (male vs. female) within the participant responses.
Disclosure of HIV serostatus was discussed by both genders of PLWHA. Participants were concerned whether they should disclose their diagnosis and how to disclose it to their family members. Specifically, for women, family relationships and financial burdens were discussed most often. In terms of men, HIV disclosure was the key concern followed by disclosure of their sexual preference and concerns over what people were saying about them in the community.
This project compared and contrasted concerns of Asian HIV-positive men and women. As healthcare providers promoting self-management by HIV-positive individuals of both genders, it is important to consider that there may be significant differences between them. Future interventions should consider how gender role influences self-management strategies in PLWHA and how support can be targeted to achieve a better quality of life for PLWHA.
亚洲人是“被遗忘的群体”，其艾滋病预防和治疗需求长期以来一直被忽视。关于艾滋病毒/艾滋病感染者（PLWHA）的研究主要报告了男性和性别少数群体的身体和心理状况。
我们使用数据挖掘技术，从对33名女性和12名男性（共45人）进行的汇总深度访谈中选择词汇和词型，这些受访者均为艾滋病毒呈阳性，居住在美国旧金山、中国上海、北京或台北。我们在参与者的回答中分析了基于性别的数据（男性与女性）。
艾滋病毒血清学状态的披露在艾滋病毒/艾滋病感染者的男女两性中都有讨论。参与者担心是否应该披露自己的诊断以及如何向家人披露。具体而言，对于女性来说，家庭关系和经济负担是讨论最多的。就男性而言，艾滋病毒的披露是关键问题，其次是性取向的披露以及对社区中人们对他们的议论的担忧。
本项目比较并对比了亚洲艾滋病毒呈阳性的男性和女性所关心的问题。作为促进艾滋病毒呈阳性的男女两性自我管理的医疗服务提供者，重要的是要考虑到他们之间可能存在显著差异。未来的干预措施应考虑性别角色如何影响艾滋病毒/艾滋病感染者的自我管理策略，以及如何针对性地提供支持，以提高艾滋病毒/艾滋病感染者的生活质量。
